Mums cancer has consumed her.

Good morning. 
My darling mum was diagnosed with CUP (cancer unknown primary) 15 months ago. She had some chemo rounds and it still grew slightly each time. Chemo then stopped working so we have just done 2 x trials in London for immunotherapy.

Mum had a fall last sat then Wednesday night where she stayed on the floor all night without calling anyone.

Since she has been in hospital with a fractured coccyx.

Since being in hospital she has had hallucinations and delirium, this is the most stressful and upsetting thing of my life right now. 
My clutch on my car has broke and can't afford to fix it just yet, dad has brain damage from a hemorrhage 25 years ago and mum as I don't even know her and just trying to sort my children going to school etc etc etc... 

I think my brain may explode!!

 

So yesterday we had the news that her cancer has consumed her now and to set up palliative care at her home which is where she wants to be.

The hospital are trying to change her opiates so she's not so delerious. 
They even thought it may of spread to her brain.

So anyway after rambling. She doesn't want to know how long she has left, nor my sister, but I kind of do within reason.

 

Has anybody or a relative had liver/lung without treatment and a timescale? Days/weeks/months? 
I know everyone is different. I'm just trying to spend as much time as I can by borrowing husbands car, taking and picking him up from work,  school runs, 25 miles opposite direction drive to and from hospital etc etc and I'm just so tired.

  • Hi there 

    So sorry you are going through this - what an awful and terribly stressful time you are going through. It's no wonder you're feeling on the edge. 

    I'm just wondering if anyone around you could help you manage everything you're juggling at the moment...do you have any friends or family members who you could ask? Even if it's just them helping you to do school runs, housework, cook meals, babysit kids, giving you lifts, help with washing, ironing and shopping? What about other Mums you are friendly with? Don't be afraid to ask for help...I'm always reluctant to but have had recent experience of needing it to manage a stressful period and several people coming forward (even some surprising ones who I didn't think would) which was a great relief. 

    Could your husband take some time off work to help? Annual leave? A period of unpaid leave? Or put in a request to work flexibly (for example, from home) to take the pressure off? Even if he could do this for a week or two, this would no doubt help you xxx 

    I'm here because I lost a parent due to cancer which was lung, spread to the other lung and liver (and likely elsewhere). Sadly, we didn't have long after the diagnosis but how long is really dependent on the person affected xxx I wonder if you can sneak in a word with your Mum's medical team....if you do want to know xxx 

    You are really going through it right now xxx please come back here and let off steam any time you need. It is very distressing to watch loved ones being delirious and going through hallucinations...I know how awfully upsetting this is to observe. Hopefully your Mum will be made more comfortable under palliative care (they're experts at this stuff) and this can be resolved. 
     

    perhaps now is a good time to have a think about what you need to do to reduce the terrible stress you are under xxx again - don't be afraid to ask for help...xxxx