My mum has lost the will to live

My mum got diagnosed with incurable lung cancer back in November, which has spread to her head, both lungs and spine. 

She refused treatment until early January until all the biopsy results and stuff came back (which we didn't know about) and she is now very weak, with very little muscle mass and has completely lost the will to live. She's had radiotherapy last week and the consultants are going to come round and talk to her about other possible systemic treatments like chemo today, but I'm pretty sure she'll refuse it because she doesn't want to be here anymore - which is what she told me dad yesterday, and she's taken to choosing smaller meal portions, I'm assuming, to weaken herself further to speed the process along.

Honestly, I'm at a loss at how to deal with this - I'm angry that she doesn't want to fight - if not for herself, then for her three kids, her partner, my dad and all her friends- I'm angry and frustrated that she's doing nothing to help herself, she just lies in bed all day, doesn't read anything, watch anything or do anything to distract herself from her situation and just wallows, which is how she's probably come to the realisation that she doesn't want to be here anymore. I'm going to visit her tonight but honestly, I'm dreading it - and I feel so, so awful for saying that - but it will literally just be me sitting there spouting inane drivel at her, which she won't engage with (until she gets sicks of it and snaps) or just sitting in silence because she doesn't talk to us about anything. Surely she must know how upsetting this is for all of us? And if she doesn't, I don't even know where to start to tell her, and I'm anxious to do so in case it upsets her. 

Does anyone have any advice on how to deal with this? Honestly, I feel like I've completely lost my mum already, because she's not the same person she was before she got ill, she's a shadow of her former self and I don't know how I'm meant to cope with this, I don't know how to process my feelings and I don't know what the right, unselfish thing to do is. Does anyone have experience with this? If so, how did you handle it? 

  • Hi Kathryn, what a horrible time for you all.  There comes a time in our lives when although the child we have to become the parent.  She's upsetting all of you and you're not wanting to upset her, so a viscious circle.  I truly don't think she is going to change her attitude, there is a lot wrong with her and incurable cancer is hard to deal with, I know this as my husband has it but although nearly 74 years old is taking all the help he can.  So how to cope?  Be honest with her, tell her how hurt and angry you are, yes it will upset her but she may take on board what you say.  My Father and I had this sort of relationship until we fell out big time and I gave him a few home truths, he actually listened because it was new to him that for once it was about my feelings, my hurt and anger and it changed things round.  So you need to stand up to her, don't be angry or mad, just tell her how you feel, she may just listen .  If not then there is little you can do but respect her wish to die she is in a black tunnel and this is her way out.  You should have a McMillan cancer nurse to contact so you can discuss what is happening or speak to one of the nurses on this forum they can help you.  I wish you well and that whatever happens you will be there for Mum, her way or your way.  Carol x 

  • Hi, I'm so sorry to hear of your mum.  It's awful to witness. My dad died of lung cancer last year very rapidly and I'm still heart broken. What I will say is he had a rapid deterioration and wasn't fit for treatment. What your describing including lack of appetite and weight loss is likely to be the illness itself. I was also annoyed my dad wouldn't eat but the cancer makes them lose their appetite and strength. Keep offering light food and fluids.  Regarding treatment when a cancer is advanced sometimes it's palliative treatment only.  Some patients are not keen on certain treatments as the side effects are very strong and make you feel poorly. You mentioned your mum lying in bed all day and not wanting to help herself, again cancer makes you so ill and poorly. This happened to my dad he disconnected and didnt talk much, at times i too thought he was being difficult but realised later it was the illness coupled with his emotional state. I felt helpless ando felt a lack of control over the situation. Speaking to your mums consultant and you and your mum knowing the benefits and drawbacks of certain treatments will help her make choices. Just being there for your mum is all you can do, emotions run high and you feel you want to be in control. Sometimes you can't control things but merely be there to offer support and ask her what she wants or needs. Thinking of you all. Xx

  • Hi I'm so sorry about your mum

    my mam was diagnosed on 27th December with cancer in spine and skull she had had breast cancer 5 yrs ago too she also has dementia so we decided we wouldn't tell her she has cancer in the 3 weeks since diagnosis she can't walk anymore and just lies in bed sleeping she has stopped eating but drinks now and again so it is maybe the cancer that is doing this to your mum not that she has given up. Try not to be too angry with her she is maybe just to tired to cope anymore ... it's just so sad and awful seeing what this disease does to them