Hi all. I'm struggling a bit tonight and could do with a little info from anyone who may have been in a similar situation.
My mum (70) and I (31) have been caring for my dad (70) who has been suffering from stage 4 colon cancer for the last 18 months. Upon his diagnosis, he was told that it had metastasized to his liver and would not be operable, but he responded very well to chemo and radiotherapy, and has had a very good quality of life over the last 18 months.
Unfortunately, in October, he started to suffer complications from his liver. He was started on a new course of chemo but it was abandoned after one round when he started to experience jaundice, ascites and upper gastric bleeding. He remained pretty functional through to Christmas, but since then, he has had less and less energy. The ascites was a big problem and was drained twice: the first time, he bounced back immediately, but the second time, he did not. He had an appointment with his consultant last saturday, and was told that there was nothing more they could do for him with regards to the cancer. He was given 3-6 months left to live.
In the week since that appointment, he has gone massively downhill. Literally in the space of days, he went from being tired but functional, to sleeping most of the day, shuffling around like a centenarian and having to have meals prepared for him. Initially we thought he was simply depressed or had given up, but then his jaundice got worse, his ascites returned, and he lost his appetite. In the last 48 hours, he has suffered from diarrhea, been nauseous and vomiting, been confused, and unable to eat. Basically, all the hallmarks of end-stage liver failure.
Today, his consultant advised us to take him to A&E, and I literally had to tie his shoelaces before he left. They've admitted him and given him fluids but haven't done much more as yet. They did some blood tests - I'm not party to the full results but it showed that his bilirubin levels had shot through the roof (up to 4.5mg/dl) and that his kidneys were failing. They also asked him if he wished to be resuscitated, should his heart stop. He said no.
Obviously, we've had to come to terms with the fact that this is not a 3-6 month prognosis at this point. It's not even the primary cancer that's getting him: his liver is just packing up. The problem is that no matter how much I google, I cannot find any kind of solid timeline for end-stage liver failure so I have no idea what to expect right now based upon his symptoms. Are we talking weeks? Days? Does anyone have any experience with this kind of situation and can let me know how much longer he might have?
Thank you.