Hello serendipityb, 

I have been following your brother's moving story for the past five years and that sadly due to his disability he has not been able to receive any treatment. I am so sorry to hear that he is suffering from coughing and breathing difficulties at the moment and that you have been informed that this may be caused by his airways narrowing and that his time might as a result be limited. 

It's difficult for anyone to be able to predict how long someone may live and perhaps your brother's medical team will be best placed to tell you more about what these breathing difficulties mean and what to expect so don't hesitate to ask them questions and I hope they will be able to guide you further. 

Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm if you wanted to talk things through with them. 

We are thinking of you and your brother at the moment as it must be quite a difficult time for you both. He does seem to be an exceptional person. We're all here for you if you need to talk.

Very best wishes, 

Lucie, Cancer Chat Moderator

Hi 

thank you for replying, saying you have been following my brother's story and remember him means more than you can know.

The gp has been waiting to speak to the hospice consultant about my brothers pain, he's already on an unusually high dose of Fentanyl patches (350) so another increase is unlikely because they are worried about side effects but also because apparently when the dose is too high it might even make the pain worse. 
Because of his severe disability he cannot understand so would not allow injections etc.

its just heartbreaking and now this new decline