Glioblastoma 89 year old dad

Hello my dad is 89 and was diagnosed 24th September 2019 with grade 4 glioblastoma  after having a siezure.  They cannot operate and have advised palliative care only.  He has been on anti siezure meds and steroids and doing well ie still walking  and totally self sufficient.  He had a huge siezure on 27th dec and was put on end of life palliative sedation , we were  told he had hours to days to live . However after 3 days he was still with us . The drs lowered the sedation slightly and moved him to a hospice.  He has slowly come round more over the last few days and to a stage where with a nurse helping  he was eating and drinking today . Which is great . However  time frame wise we have no idea.  He was originally given 3-6 months with no treatment.  The tumour is in the middle of his head and about 4 cm big .we dont know if he can still walk at all thr physios may see him next week to assess him. His shots term memory is also really bad since this siezure.  He is more asleep than awake but everytime he wakes up he is asking , where he is, is this a hospital,  what's wrong with him, is he dying etc.  We think when he wakes up after a nap he thinks its a new  day. Does anyone have experience  of  his and know how long he may have left etc 

  • Hi Karen, sorry to hear ur dad has also this horrible disease!! Dad had surgery on 25.11.19 was told without it he had 12 weeks! With 6-9 months!, Was home for 9 days lost mobility/ weakness back to hospital for one week, while in hospital consultant spoke to us dads tumour was 8cm & growing at fast pace!, no more treatment & looking at weeks! Home now 3 weeks, still just walking short distance! Getting weaker on steroid & Keppar, no seizures since surgery , day/nite mixed up like ur dad has a doze thinks it's a new day! Sleeping more & no concentration! Short term memory very poor! Explained to us as Fast & Nasty by consultant definitely true words for it!!, will keep ur dad in my prayers & u look after urself