Billygoatt,

That's what I want to hear well done,  I must pull myself out of this depressed state if I am to do what you have been strong enough to do, if I get support from my oncologist and for the first time since being diagnosed get some form of treatment you will see a change in my posts, with a little medical support I will be stronger -  but this only offering pain relief and a possible stent do not give hope or encouragement that I have a chance, I feel this Friday holds everything that matters, all the oncologist as to do is let me know he is willing to give treatment of some kind, I don't know how they can refuse treatment,it's wrong.

I have waited near two months for this meeting, they will not push me away easily, I must be allowed to fight back.

Good luck for Friday billygoatt, hopefully we will both be able to post - Good News.

Alanm

Hi alen from being diagnosed i was four months before treatment started, had x-ray ct biopsy, Mri in between all the waiting is a nucience for everyone, as you say things want changing so waiting is a lot less...stressful. . 

Billy 

Evening AlanM

No problem mate , keep strong and fight this bstard disease as long as you can , and good luck Friday , give your oncologist what for and tell him of your awful treatment so far .

Ive been to Bereavement counselling today at the Hospice as i still have anger issues regarding my dads treatment and what this disease did to him . 

They are great people , and Reiki thats great , take up all their help as they genuinely care . Good luck on Friday , keep strong .

I have been in palative care for  two months, the only care I have received is from My local Al hospice, I am not complaining they really are caring and helpful I am so pleased I contacted otherwise I would still be waiting for a caller, Macmillan booked to come to my home about 10 days ago and then had to cancel so it has all been down to the hospice - benefits, blue badge and courses.

You have given me some hope with what you have been through, but it certainly makes you think when they give you twelve months max but you are still waiting for any form of treatment two months later.

Mikkey71,

I so agree with you the hospice is top class they really are there for you.

Do you know what rieki is ? Can you tell me what to expect from it, I have had one session of counselling along with the tie chee so far, if the NHS and Macmillan was as reliable and caring as the hospice it would be a lot more manageable mentally and physically.

I fully understand your anger for you and your dad's betrayal, I hope in time with the support of the hospice you can learn to live with it finding peace of mind.

I will post Friday with hopefully the news I am to receive treatment, if I don't post it may mean I have been locked up for trying to shake some sense into the oncologist.

Hi AlanM

Reiki is an alternative therapy practised with the palm of hands over the body . 

It has a very relaxing effect on the body and can relax the mind .

I wish my dad was well enough back then and not so old school to try Reiki .

If i were you , i would go for it , see how it feels , it may be very positive for you . Nothing really to lose , also i have total confidence in the work of Hospices. 

Haha try not to abuse your Oncologist but if he gives you bad news or attitude , give him both barrells , some of these god like medics need a reality check , they are dealing with real people not numbers .

And thank you for your kind words regarding my issues 

Good luck Al 

Hi all, 

Just returned from the oncologist meeting, it was a lady who treated me with respect understanding my needs to not give in, she explained the cancer has now spread from my oesophagus cancer to my liver and bowel and could not be cured, she went on to say she is willing to give me a combination of chemotherapy to try and slow down the progress.

I will receive a course of several cycles, xelox given every 21 days given by injection / infusion capecitabine tablets for 15 days then have a seven day rest before repeated.

At last after two months of being told No Treatment I am being given a chance, not sure if I mentioned why I want to extend my life, my mother has final stage dementia in a nursing home I pay the bills and make sure her care is up to scratch she has no Idea who I am and is unable to do anything for herself, she is bedridden I must be here for her.

I will now be looking for good news from Billygoatt who is undergoing Tests today.

Mikkey71, I wish I could have met your dad I would have taken him with me to tie chee, and the rieki I am open to anything that may help physically and mentally.

My hospice nurse was by my side and meeting me Tuesday to talk it all through with me, a big respect for the hospice

Hello Alan

Thanks for updating us. We were thinking of you this morning and hoping that you would have a positive meeting with your Consultant. We're so glad to hear that you felt the consultant listened and explained everything and that she's been able to offer you some treatment to try and manage things. 

It's great to hear that the hospice are being so helpful too. Having that support is invaluable and hopefully the complementary therapies they are offering will help you to feel more relaxed and better able to cope with things. 

Please do keep in touch and let us know how you get on at the meeting Tuesday. 

Best wishes, 
Jenn

Cancer Chat moderator

Thank you Jenn, 

I will keep you and cancer chat updated.

I apparently have to have a safety meeting and blood tests before the chemo starts at the hospital, I will not be turning my back on cancer chat I need the guidance and support I take from the posts, there are some very good genuine people on here that just want to help they have been a good support to me.

Best wishes to all

Alanm

Hi alen, won't know results till i see specialist haven't got appointment yet,. Like everything it's wait wait and wait, I've a lovely bruise where the needle went in just got to drink plenty to get the radiation out my system before i glow in the dark. Glad they're getting things sorted finally, not long to Tuesday eather. Best wishes........... Billy