Next stages for mum receiving palliative care.

Mum is going into her 3rd week receiving palliative care after being told 2 weeks ago that there was no further treatment available for her. She is 72, been theoighb2 major operations and 33 rounds of radiotherapy to try cure scc of the tongue. 3 month out of radiotherapy the nasty vile disease rears its ugly head again. She has many lesions around her scar line which keep weeping, also the biggest tumour is near her right collarbone and size of a tennis ball now, one directly next to it. Palliative care team have been twice (once a week) yesterday her lips and face were all swollen, she is very weak and could barely sit up to allow me to help change her nightie. (As her tumours had been leaking). As I've never been through this before and not sure what to expect..what is the next stage to look out for? Shes already staying in bed, mostly awake/in and out of sleep. Shes talking although slurry. What can I expect next..?

  • Hi .. and welcome ...

    My heart goes out to you and mum .. cancer sucks big time.... it's beond crule ...

    If you call Marie Currie Mon to Fri .. go on their home page .. think your Dr/ district nurse can refur you too .. they are there for people with terminal diagnosis and their families... they will give you practical help and advice ... please don't do this alone .. reach out to anyone you can ... McMillan can offer help too ... your not super woman... your just a woman ... you need to look after you to, if you can get a little break, take it ..  let us know how you go ... sending you a vertual hug...  Chrissie xx

  • Hi there.. My mum is also receiving palliative care for ovarian cancer. Don't struggle on your own. Do you have phone numbers to ring if you need extra support from palliative care? My mum has as been on drivers for some time, so has community nurses every day, and they and OT have put in lots of extra support when they could see things were deteriorating. For example we quickly got a hospital bed at home, commode, etc, and now have Hospice at Home carers coming daily for personal care. We also have an emergency number which we have used today for help when Mum had her first accident and bed need changing, etc. Now getting really impossible to move Mum on our own. Just get all the support you can. We have been really fortunate with support but may be a postcode lottery. Sending hugs x

     

  • Thankyou she has my dad at home and still going  to the toilet but shes using them as excuses for feeling tired at the minute. I work full time but get to spend a little time on an evening with them. Shes declined a bed downstairs but she has a mattress topper given for when shes unable to move so much. The palliative care come as and when, the district nurses are every two days, i didnt realise they can help with changing, cleaning and everything else. what are drivers please? Dad mentioned theres a box of emergency meds in the house and mentioned 'drivers' but I didnt ask x

  • If your Mum wishes to stay at home, you will probably find there will come a time when a hospital bed is needed for her comfort. My mum has hers upstairs as she didn't want to be downstairs. They had to move double bed out and my stepdad now sleeps in a single bed in same room. My mum had syringe drivers originally for blocked bowel. Basically they are cartridges used for putting all sorts of medication in which then goes in intravenously. Mum now has 3 as on so many different meds. Obviously this may depend on type of cancer and symptoms. From reading on here it seems that quite a few people end up with a driver for pain relief meds. The emergency meds are there ready for when they are needed, so you're not waiting on prescriptions. If you want to know more, try speaking to your dad or the palliative care team. The more you know about what is happening the more you will be able to support your mum and dad. Best wishes x