Scc stage 4 survival

Hi my dad has had a tough time in the last year. He had a facial palsy which doctors thought was bells palsy a year ago then 8 months ago we were told it was squamous cell carcinoma which had spread to nodules in neck with a temporal mass. He underwent radiotherapy which vastly reduced the mass but it is still there and unfortunately inoperable. He was told he had just months to live over three months ago and after some ups and downs he seems to be doing better albeit he is in a lot of pain. Could the cancer be dormant now and he could see a few years. Has anyone experienced anything similar? 

  • I had almost exactly the same diagnoses in Jan 2019. I had had Bell's Palsy since April 2017. Was admitted to Hospital in January with what I thought was a severe ear infection. A CT scan revealed it was a secondary cancer in my right Parotid gland and lining of my right ear. SCC. No primary cancer was found. It was inoperable but no spread elsewhere. I had 6 weeks of daily radiotherapy and 6 weekly courses of Chemotherapy. This proved completely ineffective. I am now on Immunotherapy coming up to the 8th round. This does appear to have been successful in that the latest CT scan compared to one I had in June shows the cancer has shrunk. Also during the Summer I was hospitalised for 6 weeks because I lost all sense of balance and my swallow. I was fitted with a PEG tube for feeding. Eventually I recovered enough to go home. I have recovered the ability to swallow so though the PEG tube is still in place, just in case, I can eat through my mouth. I also recovered the ability to walk going from wheelchair to Zimmer frame to Wheely Walker and finally no aids! How do I feel? Dreadful. Everyone thinks I'm doing amazingly but I get really tired really quickly like after 5 mins walking. Some nights and most mornings I wish I wouldn't wake up as that would be the best outcome for my family. I can't see out of my right eye which is permanently closed due to nerve damage. Also my face is completely distorted due to total paralysis of the RHS of my face. My face feels swollen and uncomfortable all the time. I'm totally dependent for absolutely everything on my wife. I've gone from being a fit and healthy retired 57 year old man to a complete invalid in the space of less than one year. I have never asked what my life expectancy is. But at the moment I feel like I'm existing rather than living. I spend most days sitting on the sofa watching TV and scouring this forum and online newspapers. I try to stay positive for my wife and daughters but honestly I feel like I'm one of the living dead. Sorry if this post seems unduly negative! But it is how I feel.

    cheers,

    Oldbob62