Stage 4 GBM end of life

Hi everyone,

Can't quite believe I'm writing this. 
My beautiful mum had her scan results back yesterday, and our worst nightmares came true. The tumour has grown back and spread round her brain- the 'tentacles' have grown all over and there's nothing more we can do. No more surgery or radio or chemo, they said she's got probably months left. Hopefully we have her this side of Christmas still.

I just wanted to know- what can we expect? I'm only 23 and it's going to be so hard seeing Mum lose her cognitive functions, I just don't know what to expect with this type of cancer. 

  • Hi rachWBA,

    I'm so sorry to read this. I can only imagine how difficult this must be for you and all around you.

    Unfortunately there's nothing I can really offer to help in terms of the answer to your question. It is always best to discuss this sort of thing with your mum's doctor as they are best placed to advise specific to her. It's of course important that you're as informed as possible so do try to ask any questions you can.

    If you'd like to talk anything through with our nurses, you can reach them on 0808 800 4040 - Monday-Friday, 9-5.

    I'm sure there are others on this forum who have been through, or are going through, something similar, so do have a look or hopefully others will be along here soon. I hope you find it some small help to use this forum and get any support you might need.

    Try to make sure you look after yourself and talk to others as much as you'd like to.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

     

  • Hi, my mum was diagnosed with the same as your mum. Unfortunately from diagnosis to her dying was only a short time. I was scared what the end might be like but she was a little confused but chatty right up to her passing.She suffered mild seizures but we were supported by her medical team. She was never in any pain. 

    Get everything in order, it helps to know that anything your mum wants is sorted for her. Then spend time with her, I put everything on hold and don't regret a single moment as I had time to say everything I wanted to. Hospice care is excellent should you need it. My heart aches for you, the road ahead is going to be difficult and you will need support, have you got friends and family who can be there for you?

    Xx