End of life symptoms

Hello everyone,

 

My cousin (22) was only diagnosed in July after suffering with a two week long headache. It was removed and biopsy came back as stage 4 very aggressive. She began radiotherapy to blast any rogue cells, but two weeks into radiotherapy, the tumour was back, in a slightly different part of the brain and growing differently, almost like algea. Oncologists thought best plan of action was to continue with the radiotherapy as planned, as the radiation needs time to build up in the body to be most effective. Half way through the traeatment, we were told the tumour had reduced by 50% so all was looking good. the plan was to complete radiotherapy, have a 6 week break then have a few months of chemo. Days after the radiotherapy ended, symptoms were back. Headaches that would not go with pain relief. A scan was done which revealed in the days since radiotherapy had stopped, 3 more tumours had grown. Discussions were had were the doctors explained that she would be too weak for anymore treatment and that the condition was too aggressive to beat. They said it could be weeks or days, they cant say for sure.

 

She was moved to a hospice on Friday. I want to know what the final few days will look like, so I can prepare my family. Some of home are struggling to get out of the mindset that there are still options. There isnt. This is the reality, as heartbreaking as it is.

 

So far she has lost the ability to walk, she can stand but she is very wobbly and needs two people to help her walk, and she walks very slow. When she did try to walk by herself she fell. She is very withdrawn, sleeping all day, or laying with her eyes closed seemingly not aware of conversation going on around her, she is very snappy and irratable especially with her mum, she seems forgetful, she has switched off her phone and does not want to talk to people. She doesnt want to eat. I have also noticed that as she sleeps, parts of her body twitch. She cant open her eyes wide either, her eyes are very squinted and she has developed dark circles under the eyes.

 

What can we expect???? how long do you think she has???

 

Thanks for your help!

  • Hi I know exactly what your going through my husband is in a hospice with terminal cancer and going through exactly what you said he sleeps all the time has no concentration and is hardly aware I'm there the doctors just keep saying its a waiting game  but surely they can tell something this day and age but they can't everyday you just have to wait and see and it is heart breaking watching loved ones fade away why is it we don't let animals suffer but we allow humans to go through hell and hang on waiting to pass  a vet  would advise  but doctors just say can't give you a time sorry . Sorry for the rant but get angry watching my husband in pain and can't do nothing 

  • So hard to watch but being there just talking reading a book might give him comfort if he has a strong will to live he will hang on there, but watching them in pain is awful I know have they said they can give anything so hope find some solution x

     

  • Hi

    so sorry to hear of all this about your cousin.

    if it's any help my dad just passed away from bone cancer and when the hospice man (who visited at home after he came out of hospital) saw him I asked him how long?He said well if he has changed a lot (in your eyes) week to week then he has weeks.

    if he has changed a lot in months, then he has months.

    when you can see a daily change, then he may only have days.

    i found this to be correct in my dads case.

    best wishes, caroline

  • Hi, first I would like to say just how sorry am I to read this with your cousin being so young. I am aware your post is a few days ago and unsure if things had changed for you but wanted to answer your questions.

    My Mum passed 8 weeks ago in a hospice from breast cancer that had spread to her lung, brain and stomache. The last 5 weeks of her life was hard for us as a family to watch as I am sure you feel the same going through what you are. All of what you have described was my Mums last days. My Mum also become irrate, distance from her surroundings, unintersted in her grandchildren, dry and sore mouth, food became less, she lost control of her bowls and bladder. The last two days of her life she was in a coma state and on the day of her passing her feet went blue, her breathing chnaged dramically, a deep rasping sound. Her passing was peaceful with no struggle. I feel being there, holding her hand, rubbing her tummy when she was in pain, massaging her ankles, stroking her hair and telling her I was there helped her as much as it helped me. 

    Be strong but don't be afraid to let go of your emotions. I wish you all the best x