Mum shock diagnosis - Need help

My mum has been having stomach pains since March this year, nothing showing in her many blood tests, ct scans etc.

She had 2 endoscopies and only because of the weight she lost in a month, they decided to keep her in..

We were all prepared for her to have either a PPPD or Whipple procedure and the surgeon was confident that it was going over and above what was required but wanted to carry out this major surgery to be on the safe side.

She had the surgery last Thursday I was able to see her in the HDU department after it, and I met with her surgeon on the Friday morning as it was a lengthy operation he wasn't available Thursday evening.

We recieved the devestating news that the disease has aggressively spread within the 6 weeks from the last CT scan and that they couldn't remove all of the cancer that was present. It was also explained that they had done a bypass to help speed up her ability to start eating and drinking as normal.

It was mentioned by the surgeon that Chemo and Radiotheraphy would be next in 4 - 6 weeks to give my mum enough time to heal and repair from the operation.

It's now almost a week down the line and she hasn't been referred to an oncology team as yet.. I don't know if i should be concerned with this?

I'm researching everything I can with regards to alternative therapies to try and help slow things down.. I'm also trying to get more information on any clinical trials, but as they don't yet know if it has originated here or if it is secondary to when she had breast cancer 2 years ago.. I don't really know where to start.

My mum is only 55 and I'm 29.. I don't want to lose her, and will try anything and everything possible to keep her with me as long as I can as i can appreciate anyone would.. 

If anyone has any help or guidance that would be able to help, it would be greatly appreciated.

We're a small family, just me, my mum and my gran.. I can't accept that there is nothing that can be done..

  • Hello cmj1708 and a warm welcome to our forum

    I am so sorry to hear that your mum's disease has spread aggressively in the last few weeks. It must be a heartbreaking time for you and those around her and I am sure she appreciates all your support during this difficult time. If you are concerned that she hasn't yet been referred to an oncology team, I think it would be a good idea to give the hospital a call to find out when she is due to see someone I am sure they will be able to tell you more about this so don't hesitate to ring them and explain your mum's current situation. 

    I know it is really tempting when dealing with so much uncertainty and sad news to research alternative treatments but be very careful as there is so much misleading misinformation on the internet these days and a lot of alternative therapies can actually be dangerous or interfere with your mum's treatment. So it is crucial to talk to your mum's medical team about this as they will be best placed to advise you further. We have information on our website on the difference between alternative and complementary therapies which you can find out more about here. You mentioned also that you would like to get more information about any clinical trials that might be available so I thought I would point you in the direction of our clinical trials page which will give you useful information on this. 

     

    We're all here for you anytime you need to talk as are our nurses on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

     

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi cmj1708,

     

    I’m so sorry to hear about your mum’s diagnosis. You sound like you’re doing everything you can and staying positive is so important.

    I am in a similar position right now and it’s heartbreaking. I’m currently visiting my mam in hospital. We’re awaiting biopsy results (past 10 days have been torture) but a cancer specialist nurse has been to see her and told her she had cancer of the oesophagus and it may have spread to her stomach. My world is falling apart so I know how helpless you feel. My mam is my world and we’ve always been together.

    im thinking of you and your mum and nan. 

    Tricia x