My Mum Has Terminal Cancer & They Have Stopped Her Chemo

Hi, My name is Molly, and I’m 17 years old.

In 2016, my mum was diagnosed with bowel cancer, when I was only 14 years old. She received chemotherapy and radiotherapy every year until 2018, last year, when we were told it had spread and was now secondary, and terminal. 

As you can probably imagine, this has been a heartbreaking thing to go through, especially this year, as instead of fully enjoying myself and leaving school and starting to go out and have fun, my mum is very unwell. However, I’ve managed to stay ‘fairly’ positive up until now and always managed to try to see the good in everything. She’s been receiving chemo since last year when we found out, and she’s also been getting lots of mediciation to keep her pain under control because the cancer in her spine causes a LOT of discomfort. So overall, even though it’s still crap, we’ve been doing well recently. However, yesterday, we were told that they are stopping her chemo. It’s not working anymore so now it’s just making her feel unwell, and isn’t doing anything else. I am devastated... we all are. It just feels like one bad thing after another and Its felt like I haven’t had a chance to breathe this year. I’ve been quite positive up until now, but now I feel like I’ve hit a brick wall. I feel like I’ve lost all hope. I don’t know how long my mum can keep going without treatment. It just doesn’t make sense to me that there’s nothing else that they can try? They said that her tumour is stable, and that they are really surprised with how well it’s being controlled, so that’s the only bit of information that I’m actually clinging onto for hope. I just hope it manages to stay stable for much longer without any treatment.  I’m so frustrated and confused and I feel like I can’t breathe as my chest is all tight. I hate the unknown and not knowing when my mum will be around till is so horrible. I know that no one will know what to say to this post, so I’ve turned it into just more of a rant. I’m just so broken :( I’m only 17, I honestly don’t even want to talk to my friends or anything. I don’t have the energy to try to be happy. 

  • Hi molly. You're right that there's not much I can say and maybe nothing that will make you feel any better. My mum's in a very similar situation and I'm also wrestling with feelings of uncertainty, frustration and fear. It is awful feeling like there is nothing you can do. I'm 40 this year and still feel like I'm about to fall apart most days so the fact that you are holding it together aged 17 is a huge testament to how strong you are and how much you love your mum. You may not feel strong but you are and you're doing brilliantly. Have you thought about speaking to a counsellor? Your gp could help with this. And have you spoken to your mum? You probably feel you want to protect her from how awful you feel, but she will already know that you are suffering and she may even be hoping that you start a conversation with her about it. I wish you and your mum all the strength and love in the world. 

  • Hi Molly,  No one can take your sadness away, but just know, your never alone. You are doing amazingly well to cope with all of this at just 17 years old. I’m a lot older and I know that I’m not coping well with my dad dying.  Sadness is a natural  reaction when given this kind of new though, So please don’t feel like your broken. You don’t need to be happy all the time, that is not normal.... you just need to breath and remember to give yourself time. 

    Sending you hugs for this difficult journey. 

     

  • molly i too am a fair bit older but totally understand your pain I’m in a same position with my dad, no there’s nothing I can say to help your pain and anger with a terrible situation but you are never alone and talking to people be it a forum or face to face will help you, I too feel very alone and can’t share my grieve with my partner and children but please be strong for your mother and cherish everyday you can together. Please look after each other and show love everyday x

  • Hey Molly, 

    I am so sorry to hear your sad news, at such a young age as well. I am 23 and I lost my dad 3 weeks ago to cancer. Dad was the same he was having chemotherapy as well and was due to have more but they stopped it because the cancer was still spreading, and it seemed unfair to carry on giving him a treatment that was doing more damage than good. I know exactly what you mean when you say you hate not knowing how long your mum will be here. If I could change anything about my journey with Dad it would be to not threat and just enjoy the time we had. It is much easier said than done I know. My heart goes out to you, I was the same as you my whole life was put on hold at the time it felt frustrating but now I am so glad I done what I done for dad. Please use us as a support network, a lot of us on here are going/ gone through something similar and we can try our best to answer questions. Your mum must be so proud. Take care of yourself xx

  • Hi Molly

    I'm so sorry you're going through this at such a young age.  I'm on the site because my dad has just been diagnosed so not in the same situation as you yet.

    I'm replying as my son is a little younger than you and it struck a cord with me being an older mum that he may be in the same situation you currently find yourself in one day. 

    As you say nothng anyone says can make you feel better, only time will do that.  As others have said you're doing amazingly well keeping it together at such a young age but that must be testament to your mum and family and the childhood they have given you for growing up into a strong person even if you don't feel you are at the moment.  As someone suggested - talk to your mum amd let her know how you're feeling - she will want to know. I'm sure your mum must be extremely proud of the young lady she has helped to raise and she will want to help you as much as she can through this difficult time.

    A number of years ago I had a really difficult time and I found writing a diary of the way I was feeling, my anger, my sadness, my hope for the future helped tremendously - a little like a private blog if you like.   I would also suggest a local support group as I am sure the age you are your teachers or gp would be able to put you in touch with similar aged people going through the same thing.  I don't know if the Cancer Research nurses can offer family support but I do know that Macmillan do and if you have centre near you, you can drop in at any time and talk to them - they're amazing.

    At the very least, don't feel alone write on here and there will always be someone to listen.  

    Sending huge hugs to you and your mum.

    Take care

    Jackie