Hi, I am Jenny,
suffered with back pain for 3 months, eventually get x Ray told wear and tear go home and live with it. Only by chance had appointment with consultant to replace knee joint, explained could not have op as pain too severe in back, he arranged MRIscan within 48 hours. Had scan collapsed over chair taken to A and E, 5 hours later told I had camce r in spine but it had to be coming from somewhere else. Taken to ward, 3hours later told I had terminal cancer, and only palliative care would be given. I was all on my own. I was totally terrified. Thought I would be dead by Christmas. Told hospital staff not to tell my son, as I would do it when I got home. This was Friday had biopsy Tuesday 3pm, sent home 9pm. Told son, it was the most heart wrenching thing I have ever done, he is only 24, he just hit the floor, I knew I could not cry that I had to stay strong. As I had no symptoms apart from back, thought they must have this wrong, but within 10 days ringing 999, I realized I was ill. I was now given the news I would be put on immunotherapy. I have been having treatment since October every 3weeks, I am still here, still have no symptoms only pain in back, have reduced morphine down to 40mg per day, trying hard to stay positive, not always easy, would like to hear from anyone going through anything similar would just like someone to chat to. I do not know when things will turn and do not want to be given any timescale, it is so scary just knowing you may not have long, but hopefully I still have a long way to go yet, positive thinking. Hope someone replies. Love Jenny
