I just want to share mine and my familys experience with other people. My dad age 62 was diagnosed in February this year with stage 4 lung cancer that had already spread to the bones it was a incidental finding after a ct scan for something else was done. My dad had no Macmillan support whatsoever and when the nurse came to the house after us pressuring for support she decided to discuss with my dad what he would want his funeral to be like! Which for someone that hadn’t come to terms with the fact they are dying made matters worse for the family. My mum who was 72 at the time wasn’t asked if she was ok with my dad being at home or if she needed any support. we were told as the disease progressed there were no end of life hospice places but when I rang up the hospice myself there in fact was a place that he could of had but Macmillan nurses blocked him from getting the place as she said he was in fact not poorly enough for this place (12 days before he died). Myself and mum nursed him ourselves until his last breath with no support from Macmillan nurses we just got a quick card shoved through the post when he sadly lost his battle in may this year 3 months after diagnosis. The sad thing is my dad knew we were all the help he had and was frightened for other people that may have to face this disease alone with no family around them. My point is I feel from what I’ve heard some people get lots of support from them while others are left to rot literally.
