Mum awaiting prognosis

Hi All,

Firstly thank you for your honesty on the forum. Whilst it is upsetting to read it is also informative, and as most of you will remember, information seems hard to come by at our relatively early stage.

Mum was admitted to a stroke clinic aged 84 a couple of weeks ago. Her CT and subsequent MRI scans revealed a probable Glioblastoma. She is yet to have a biopsy and we are awaiting a definitive clinical diagnosis. Mum is a fighter and fiercely independent. Hence we believe she has been suffering with her tumour for some time. Certainly her sleepiness and further stroke like symptoms were quite profound before she was referred to the stroke clinic. She had become bed ridden and confused, often sleeping for complete days with her left side progressively weak. Some symptoms were masked by an underactive thyroid. Her scans revealed a 4.8cm front right temporal tumour.

After a week in hospital we are preparing to bring mum home. The neurologist within her Multi-Disciplinary Team has suggested that “she is not for surgery” and we are awaiting the oncologists suggestions for ongoing treatment. Mum has responded really well to steroids and can now walk with the aid of a stick, has a healthy appetite and is less confused.

We have yet to speak to the oncologist who has not been in contact and therefore suppose we have two questions for the forum:

- How long can mum keep taking steroids to alleviate the symptoms that will inevitably develop with the tumour? 

- Will cancer treatment, if it is feasible, reduce mum’s quality if life? 

We are determined to make her last months as enjoyable as possible. Plenty of lunches out and today a trip in my wife’s cabriolet!  Mum’s personality has changed and in some respects she is almost childlike in her appreciation of small favours.

We know it’s going to be a difficult time, but want to thank you for the support reading the forum has already given us.

 

 

 

 

  • Hi BuxtonCaff,

    Welcome to Cancer Chat. I'm so sorry to read about what you and your mum and family are going through. I know this must be an incredibly tough time.

    Unfortunately I'm unable to advise on your questions and as these things can be different for each individual it is better to speak to your mum's doctor about this just to have some more certainty. I'm not sure if you have an appointment booked in to see the oncologist - hopefully you are able to see them soon. It's often a good idea to write down all your questions/concerns so you're ready to ask.

    I know the uncertainty is difficult so I hope you're able to get more clarity soon.

    Your plans to focus on the positives and enjoyable activities sounds very sensible.

    Glad to hear you are finding this forum useful. It is a very welcoming community. Do feel free to browse other threads on the forum if it helps.

    In the meantime if you have any questions for our nurses at all, you can reach them on 0808 800 4040 (Monday-Friday, 9-5).

    Wishing you all the best.

    Ben

    Cancer Chat Moderator

  • Hi bux a lot of you questions we can't answer it depends on person spread of C strength of treatment, if she is going to have cemotheropy some people have no side effects at all others can be extremely ill with it,, it very harsh treatment most times it does help when treatment finishes. Radiotherapy I'm afraid I don't know. Good luck.

    Billy 

  • Hi Guys,

    Thanks for your thoughts. Things have moved on at pace. Mum has an inoperable Grade 4 Glioblastoma that, according to her consultant will take her life in "months, possibly weeks". My understanding is that in line with guidance for aggressive Glioblastomas the inability to operate renders chemothrapy or radiotherapy redundant; other than to offer mum a days or possibly weeks more. We have a meeting with the Cancer Nurse to discuss our options early next week and we are aware that we must keep a close eye on mum to see if there are any changes to her symptoms.

    She knows the nature of the tumour renders it inoperable but we have spared her the timescale as her steroid treatment is giving her a comfotable and enjoyable lifestyle at the moment. Again there is no guidebook; but maybe someone could let me know if this is fair or whether we should inform mum.

    Her affairs are very much in order and she is surrounded by a loving family and those whom she would wish to see, children, grandchildren and friends are all making the effort to visit in the short term. 

     

    Thanks for your support. It really helps to chat.

     

    BC