How do I cope

Hi,

 

My Dad was diagnosed with AML in 2017 and started on chemo. After three rounds he was in remission and we had around 8 months before it came back. He was told it was still treatable with the options of more chemo and a possible stem cell transplant. His last round of chemo wasn’t successful and they have now ruled out a stem cell completely, despite having a really strong match. They have said they will now provide maintenance chemo but don’t know how long that will last but they will possibly put him forward for trials. I asked how long the maintenance chemo is likely to work for and they said it could be anything from one month up until a year. I don’t know what this means. Does he potentially have a month to live? What are trials and do they ever prolong life or if it just a last chance stab in the dark with a low success rate? I haven’t spoken to my Dad about anything since we were told the transplant wasn’t happening - this is purely because I am unable to have a normal conversation about it without breaking down and I know the strain on him would be a lot heavier if he saw me in tears at this stage. His only symptoms seem to be breathlessness, pale face and tiredness but he is still functioning like himself so I just can’t understand how it’s a possible that there’s no cure. I really don’t know how to cope with this at all. I feel like my heart has been ripped out 

  • Hello Felic85; such sad news about your dad.    It is not easy to estimate these matters but I would say  (lloosely) that even if the maintenance chemo does not work after a short period it does not necessarily mean that your dad will suddenly die - from my (limited) experience of caring for others with terminal cancer it can be a slow deterioration sometimes.   Talk to your dad's doctor in more details about trials.  They are just that - trials to find out how effective a new course of treatment may be.  Sometimes they work (but not always for everyone involved); sometimes problems are found, sometimes they work partially and sometimes do not really work at all.  I have to emphasise that I am no expert at all in this field but have just spoken with friends and neighbours who have in the past asked to be considered for trials.  I hope you can get some more information from those more knowledgeable tham myself!    There is also a section of this website about trials; I will attach a link - there is a lot of information contained in this section.    Your dad may be wanting to talk to you but in his turn he may be afraid of an upsetting conversation; it is probably best to break the ice on this matter and have a heart-to-heart.  Don't worry too much about crying.  I hope you have other family members around who can give and receive support from each other. Annie

    www.cancerresearchuk.org/.../find-a-clinical-trial