Last Months / Days of Glioblastoma

Hi,

My mum has had Glioblastoma for 2 years and is getting to the stage where her body is declining, can anyone in this forum help us understand what happens in the last 2 months of a Glioblastoma patients life?

Thanks. Regards, Vishal

A detailled account of her Glioblastoma story is shown below:

My mother was diagnosed with cancel in June 2017, Glioblastoma Stage 4. Tumour is located in the Movement / Speech centre of her brain. Following a successful surgery in June 2017, she had 6 weeks of Radiotheraphy (with Chemotheraphy) and continued Chemotheraphy for 10 months. For 9 months she battelled strongly and was very healthy, she was fit, active and like herself, with very little effects of the chemotheraphy. 

The next MRI scan showed that the tumour had progressed & another surgery was suggested. The second sugery took place in August 2018, however she was not the same after the surgery. She became less active after the surery, the steroids took a toll on her body, she continued on chemotheraphy (various versions), followed by chemo combined with Sattivex (Cannabis Oil) and the cancer began to progress. In December 2018, after another MRI, we were told that the Chemotheraphy wasnt working, and it would be good to try a second round of Radiotheraphy. 

We were told that if we did not do the Radiotheraphy then my mum would have approximately 6 months to live. We did the Radiotheraphy for 10 days in January and had a scan in Mid February, the results showed that the radiotheraphy had not helped and the tumour was progressing. She is no longer on any cancer treatment medication e.g. chemo / radio / sattivex, but has continued anti-sizures and steroids to control the tumour / reduce the swelling. 

April 2019 she had another scan and we were informed that the tumour has progressed in growth.

  • Hello vthakrar2, 

    Thank you for sharing your mum's glioblastoma story. I was very sad to hear that the tumour has progressed in growth and that they have had to stop your mum's cancer treatment. This must be truly devasting for you and your family. 

    It can be difficult to predict what might happen in the last few months of a glioblastoma patient's life as this will very much vary from one person to another. I can understand though that you want to prepare yourself as to what to expect. Perhaps you could ask your mum's medical team?  They will be most aware of the progression of her illness and how it has affected her and they may be able to answer some of the questions you may have. One of our members [@Glioblastoma4]‍ described here sadly losing a child to glioblastoma so she may be a good person for you to talk to in these terribly sad circumstances. 

    Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm so don't hesitate to give them a ring if you want to talk things through with them. 

    Best wishes, 

    Lucie, Cancer Chat Moderator