Auntys dying need advice

So last month second week of January my aunty got diagnosed with stage 4 lung cancer it was very advanced it had spread to her bones, liver, kidneys and spinal chord. She got diagnosed after being in hospital with fluid around the heart and it needing draining. Since being diagnosed she's had fluid drained again twice each time quite a lot of fluid and just last week she was back in after breathing difficulties which turned out to be blood clots on the lung. They put a hospital bed in her house and put her on constant oxygen at home as well as lots of pain relief and other meds. She started to pick up a bit. We went to christies end of last week and they told her they couldn't give her chemo at the minute as she's too poorly and to many complications. And that the fluid has come back but doubled and it needed to be drained the following Tuesday which was yesterday. Unfortunately they didn't drain it yesterday as other the weekend she deteriorated just sleeping all day by Sunday was very confused. Monday morning even more confused had wet herself and breathing was very shallow. So she got put in to the hospice unfortunately she isn't ever going to go back home my aunty doesn't know this as she didnt want to know how long Shen had and didn't want to know when she was close to dying. The doctors at the hospice have said they won't drain the fluid as I point so sooner than later that could kill her. Also today she is so confused and now started hallucinating doctors have said she has not got long. Just wondering how long??? Did anyone else's loved ones get these symptoms before dying and how long before???? They have said they think it because it's now spread to the brain. It's just happened so quick all this in just over a month She's only 38 she's my bestfriend my hearts broken. 

  • Hi Lauren98

    Just been through what you describe with your aunt, with my lovely mother.  She became confused and disorientated to time at Christmas and after many weeks of me battling the hosiptal saying "this is not my mother" we were finally given a diagnosis with only days left, as her breast cancer had spread with the cancer cells invading the lining of the brain as well as the liver which was raging out of control.  Was very hard to watch her deteriorate but the blessing in it all was that she was so confused and had no memory longer than about 20 mins or so.  Meant that she was calm and happy if we got through the 20 mins of worry. The calming rythmn of words seemed to help so just chatting about other stuff, reading a magazine article out etc helped. 

    I also found McMillian and Cancer Research a great help as online resources and phoned Mcmilliam and spoke to their medical nurses, just to talk through everything that was going on and get help with what questions I should be asking the medical team.  That really helped me feel empowered so might be worth a try for you? 

    Hallicinations might be the pain killers - Mum was swopped to Oxcy based drugs as the Morphine based gave her terrible hallucinations.  At the end of life stage, the hospice nurses should be involved even in the hospital setting so you can ask to talk to them about pain management - or ask to speak to Pallative Care team, or Pain Management Team as they should all exist around your Aunts care now.  

    All I can say is you will get through - I have. Mum passed away at home on 7th and her funeral is Friday - hence I can't sleep and am looking for kindred souls at 3am in the morning.

    Wishing you the peace and support you need and the strength to keep going. x