How long do we have

My dad has astrocytoma grade 2 diagnosed 13 months ago we are at end of life care he has decided he wants to finish off his life at home with my mum.  We are on a syringe driver with various meds but up untill recently this have progressed at a steady rate. However hes is now no longer able to take fluids. I have 2 children my mother is also having chemo for skin cancer and has been his main carer untill the last 14 days since then carers have been 4 time a day and district nurse daily. I know every case is different but i wondered if anyone had an idea of how much time we may have. Just so i can prepare the kids.

Thank you 

  • hello 

    this is very hard to predict but because hes not drinking etc i cant see it being long when my dad was near the end we was looking for signs like not drinking, not eating etc but dad was drinking milk 4 pints of it a day .. on the day dad passed he seemed more restless and confused one min then had total clarity the next , he kept tryng to get out of bed even tho he couldnt weight bear... im not an expert on this but id guess and it is a guess and anytime to 10days maybe .. i nursed my dad for the last 7 weeks of his life and it was hard work but i wouldnt have changed a minute.. my dad passed during the night when he had a night nurse in, i dont think he would have gone if we were with him.. but his death was painless at the end he looked like he was smiling.. my advice is explain to the children that i could happen anytime and let them spend as much time with him as they want to ... 

     

    good luck 

    L x 

  • Hello Keb; welcome to the forum and so sorry about your family sorrows.  From what you say (no longer able to swallow, carers calling very frequently plus nurse daily) I would say that you are now getting down to the final days.   As you say every case is different but once swallowing has been lost it is  - in my experience which is not enormous but I have cared for a few terminally-ill friends - the end is not so far off.  I would tell your children that grandad is slowing down and he will soon die (however you choose to word this).  I am glad that you are involving your children in what is happening - I have found that when the children are kept informed and still see their grandad they can accept what is happening.  (Pardon me for mentioning this when you are obviously coping very well.)  They will be sad but not distressed if they are well prepared.   Have you asked the nurse for her opinion of your dad's situation.   Annie

  • Hi Keb.

    We just lost our dad to a brain tumour cancer last Tuesday, from what i recall it was only 2 days after he had stopped his fluid intake and only 18 hrs when put onto the driver.

    It can be this time scale and it can be either longer or shorter depending on the individual but to be honest once on end of life meds it is only a few days.

    I hope for a pain-free and peaceful passing for your father, take care and if i can help you with anything please just ask x