Mum has been diognosed with terminal cancer

Hello,

My mum has been recently been diagnosed with a grade 4 brain tumour and they say it’s uncurable. I’m finding it hard to believe because initially they said the tumour was very small and she was lucky as it was on the surface, a few weeks later and it’s terminal. I’ve looked online and it says her life expectancy is 12-18 months though my mum says her consultants won’t give her a time frame. She seems so well at the moment I don’t understand it. I am finding it so hard to deal with, I am only 28 and my mum is 55. Before she got sick she looked after my 2 year old daughter while I worked so she has been a 2nd mum to her, it hurts so much that my daughter will not even remember her, it feels so unfair. Everything reminds me of the fact she might not be here in a year, even things like songs on the radio. I have confided in friends but they did not say much, I don’t know if I just made them uncomfortable or maybe they just don’t care. I am so s scared for her, I hve only seen cancer sufferers on tv, Is her death going to be immense suffering? . I don’t know how I’m going to get through this. Does it ever get easier? 

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    Thankyou so much for taking the time to reply to my post, i wrote this post on a whim as i dont really have anyone to speak to who understands but im glad i did. I'm so sorry that you have the same prognosis, I read some of your posts and see you havent been able to reach out to anyone suffering with what you have, i wish i could help in some way. I feel a bit isolated too as people dont really know what to say or do if i talk about it so i wonder if i just supposed to keep it bottled up, i am scared to talk to my mum about it incase i upset her, although my partner has been very supportive emotionally. You seem so strong and selfless i hope i can be the same for my mum. Im definetly going to think about what wonderful memories we can make. Thankyou xxxx

  • Hello, 

    I'm so sorry to hear the news you and your mum have received, it's heart breaking. It's not the same, but my Mum was diagnosed with an aggressive form of breast cancer on the 13th of November, and although the outcome is looking overall positive for her, I know what it's like to be the daughter that loves her mum, and would do anything to take this cruel disease away from her. As Alfmeister said, making happy memories is the best you can do for her. Even the little things. I lose my Nan after she died within 6 months of diagnosis from an aggressive form of breast cancer, and she too was like my Second Mum, and it's not the big things that are my fondest memories of her, it's the little things, like how she always had to have Belgian chocolate on Easter and Christmas. How she used to make her own (rather cheeky) words versions of nursery rhymes, and how she used to play I-spy, but wouldn't use the right letter in the first place! Haha. 

    It's the little things that make the biggest impacts. And you and your daughters relationship with her sounds amazing. So make the most of the time you have, try to stay away from Dr Google, because that can make things worse some times, and I know the time frame may be something you and your Mum would want to know, but as Alfmeiste said, it depends on each person, and how they are doing, and what their condition is doing. 

    You can talk to me anytime, as your friends probably can't find the right words to say, or don't want to say anything wrong. But honestly, talk to me anytime. 

    Lots of love to you, your mum, your little girl and the rest of your family. 

    A xxxx

  • hello

    sorry to hear about your mum, i had just lost my mum and dad to cancer and please take comfort in the fact that neither suffered .. my dad was a little uncomfortable at the back end but that was only because he wouldnt admit he was in pain because he didnt want to get hooked on the pain killers !! but once they sorted him he was fine  .. just focus on spending time with your mum and your mum and little girl spending time together .. you cant change what is going to happen but you can have alot of fun and good memories with your mum to look back on 

     

    L x 

  • Hi, just read your post and had to respond. My mum was diagnosed with a grade 4 glioblastoma this time last year. She was given up to 2 years, then 12 months. We struggled trying to make sense of it all and hoping she would be well for as long as possible. She died after 6 months so the prognosis was so wrong  as her nurse said  things can change very quickly and not too much is known about this type of cancer. I know exactly how you are feeling! Spend as much time as you want to/can with her and remember to still live in the moment  As difficult as it is  looking back on my mums last months I know that I said everything I wanted to and have no regrets which is a comfort.

    One thing I learnt is that the medical team can try to say how things will be but they omly know so much and each patient is different.You don't have to be strong or brave just take each day as it comes and somehow you just do it albeit through tears at times. 

    Xx

     

     

  • Thankyou for your reply, so sad that you lost both parents, it makes me feel better they didn’t suffer, I would hate to see my mum suffer. She is being so strong about it all. I am so scared for her, we are planning a holiday in March so we can have a lovely time and take lots of photos. Thankyou xx

  • Thankyou for replying, this is what my mum has . I hope your mum didn’t suffer, heartbreaking you only had 6 more months together. They won’t give my mum timeframes yet something about needing to wait for the results of the tumour. She is starting radiotherapy soon and possibly chemo. Her mother also died young of cancer very quickly, so mum says she feels lucky she can enjoy her time left doing things she can enjoy. Every time I think about her never seeing my daughter grow up or meeting any future children I have it destroys me. I hope your ok, my mum is a strong lady maybe her prognosis will be better then what I’m expecting. Either way I will try to make her last months amazing. Thankyou xxxx

  • Hi, my mum had radiotherapy but wasn't able to have chemotherapy. She had a debulking operation but the odds were stacked against her. 

    It's hard to think of a life without our mum's, we've just got through our first Christmas. My mum didn't want any photos taken of her and I wish she'd let us.Id ask the consultant about medical trials to see if there are any that your mum could access. We were advised but the trial wasn't available in time. 

    My mum didn't suffer at all, the steroids were probably the hardest part to deal with as she lost her strength. 

    I'm here if you want to talk, I'm the other side of this disease unfortunately but I know how you are feeling. 

    Xx