Stopping maintenance chemotherapy

I am 56 years old, and was diagnosed with stage 4 nsclc last year. I have been receiving chemotherapy treatment since January with chronic side effects. I changed to maintainence chemo in August which contains less of the chemotherapy drugs. I have still been suffering from bad side effects, so the dosage has been reduced for the past two treatments with no change. My oncologist has broached the subject of stopping all treatment. I am well aware that my disease is terminal, and have come to terms with this.

My xrays and CT scans have showed some shrinkage of some tumours, and no further metastases or growth. My quality of life is pretty poor at the moment due to the chemo side effects. I'm inclined to agree with my oncologist and stop all treatment. Has anyone had experience of this situation? What were the consequences? What is my survival time likely to be?

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  • my husband  has  advanced pancreatic cancer with another bowel cancer. he only started palliative chemo 2 weeks ago . once a week for 3 weeks and then a week off. however he is in such a mess already. the first week was not bad but this week it has really hit him. he has spent most of the day in bed and can not cope with anything but water. his stoma bags fill with fluid at an alarming rate. he is weak and finds it difficult even to walk to the bathroom. he says if chemo does this  then he would rather have a short time feeling better  than weeks of living death.  quality over quantity any time. we all respect his decision.

  • Hi Carroll

    So sorry to hear about your husband's diagnosis. 

    I stopped my chemotherapy back in November 2019. I have to say that I'm positive I've made the correct decision. Although I have a terminal prognosis, so far so good. No significant progression or growth of my current tumours, and I'm feeling so much better! No nausea and vomiting, constant chest infections, brain fog or fatigue! I've been on holiday with family several times and had great adventures and created wonderful memories!

    If it is your husbands wish to stop chemotherapy, you must support him all the way. I know I felt a great deal of guilt when I made the decision to stop treatment, thinking I was denying family and friends precious time with me. They would all now agree that I made the right decision. Being able to spend quality time, feeling well, is so much more important than hanging on for a few extra months!

    Hope all goes well for you and your husband. Please stay in contact. 

    With love x

  •  

    Hi Pompom,

    I am glad to hear that you are so happy to have stopped having chemo. It is also good to hear that you have the backing of your family and friends.

    I agree that there is a lot in quality of life, as opposed to having a little extra time along with the side-effects. Your advice to Carrol is spot on.

    Please stay in touch and let us know how you are getting on. We are always here for you.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Pompom,

    I am glad to hear that you are so happy to have stopped having chemo. It is also good to hear that you have the backing of your family and friends.

    I agree that there is a lot in quality of life, as opposed to having a little extra time along with the side-effects. Your advice to Carrol is spot on.

    Please stay in touch and let us know how you are getting on. We are always here for you.

    Kind regards,

    Jolamine xx

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