My dad - stage 4 lung cancer

Hello, new forum user here, looking for some general input from people in a similar position, if thats ok. 

My dad is 63, and was diagnosed with Stage 4 NSCLC in September, which has spread to his lymph and adrenal glands. Due to other existing medical conditions, he was not eligible for chemotherapy, but did have some radiotherapy to try shrink tumours which were pressing on his windpipe. He has an internal defibrilator for his heart, and so we've been told that if it fails, then he wont be resuscitated. 

My dad wont tell us what the expectancy is for his diagnosis, although my mum works in a cancer ward and so has a vague idea that it is within months more than anything else. He was admitted to hospital with pleurisy in October and then released, but then began taking dizzy spells which culminated in him collapsing coming out of the passenger side of his car, where he cracked a rib and injured his face, hands and legs and he couldn't move, this generated another hospital stay, which was extended further as he caught E. Coli whilst there. He's now back home again. 

I'm struggling with his diagnosis as I don't have any straight answers really. All I know is that we are looking at months rather than anything else, however, he has been experiencing confusion in the last few weeks, where he's been reminiscing about the past and completely misremembering things, and he has been telling me that his cancer is in remission, the doctors are astonished, and will be writing papers on him this time next year. He can barely walk the length of the room, but has bought an exercise bike and has been telling me he is going to cycle a 'wee 5 or 10 miles' on it every night. 

He's also experiencing mood swings than can change in the blink of an eye, turning him from a laid back, relaxed guy, into someone who gives one word answers and rolls his eyes when you try to talk to him. There's some emotionally charged conversations as well, my mum told him she's struggling with the situation and his response was "oh yeah I can see how YOU'VE got it bad!"

I don't feel like I can talk to him about any of this, firstly, I don't want to say anything to bring him down, but I'm scared and worried. I'm his only daughter, and we're relatively close. I'm currently signed off from work with stress due to the situation and am trying to use that time to spend time with him but it's exhausting emotionally, as he sounds so convincing when he says things are going well that I want to believe him, but my head reminds me that the odds are against us. 

Does anyone have any tips on just how to get by? Has anyone else been through a similar diagnosis? What kind of timescales did you face? How did you cope? 

 

  • Hello YankeeDoodle. 

    I'm so sorry you're all having to deal with this. It sounds as if it's a difficult time for you all and it's unsurprising that you're emotionally exhausted. 

    It's a cliche but taking it one day at a time really can help. Dad may or may not have discussed an expectancy with his Dr's. Any time frame they may have mentioned would be based on their "best guess" given all the information they have at the time. 
    I wonder if you might find it helpful to have a chat with one of our team of nurses here at Cancer Research UK. They may be able to help answer some of your questions. They are available Monday to Friday 9am to 5pm on 0808 800 4040.

    In relation to your Dad's mood swings and confusion, it's certainly worth mentioning this to his specialist nurse or GP. They can review things and see if there's anything that could be responsible such as medication. 

    Keep in touch YankeeDoodle. Sometimes just being able to write things down can help ease the load and you're welcome to post here. 

    Sending our best wishes,
    Jenn
    Cancer Chat moderator

  • Hello Yankeedoodle (great name by the way!)

    oh my word I am pretty much mirroring what you are going through. My father has been told he has Mesothelioma... they are pretty certain thats what it is but dad is 81, has heart failure and if they did a biopsy it would certainly kill him first! they have told us its a matter of 3months (if that).

    firstly, you're not alone.  secondly, be so proud of yourself that you've come on here looking for help, advice, and basically someone sharing the same situation as you. YOU REALLY AREN'T ALONE.

    My dad has been ill for quite some time. on and off over the past four years or so. he has declined in weight and has started getting a little confused. he knows he has poorly lungs and his heart is bad but he doesnt know his prognosis of three months. my aim is basically to keep him happy, comfortable and as pain free as possible!! we as daughters are a lot stronger than you think! you're doing fantastic! 

    im not going to tell you what i think you should do etc - i can only tell you what i am doing right now. if my dad says anything like 'i want to book a holiday' or 'im gonna get out and do that garden soon' or 'ive been told im getting better', i will just stay positive, smile, and agree with him. all i want is for dad to not be scared or worried etc.

    i am a massive anxiety sufferer and i have seeked professional help. i see a therapist once a week and it really does help. its good to talk to someone who doesnt know your situation so they have a level mind. i also have been trying to keep busy. you need a break too. you need time out for you and do not feel guilty for wanting that!!

    do you have care at home for him? my dad should be coming home this weekend or early next week but before he is home we have been given EVERYTHING we need for him at home. hospital bed, carers four times a day etc etc. its so important to have that professional support not just for you but for mum too.

    are you getting enough friend and family support too? when the news first broke for me i was adament i didnt want many people knowing but actually, its so good to talk and let people know what you're going through. the support is overwhelming but in a good way. im so glad i didnt bottle it up.

    i wish you all the luck in the world. please message me anytime at all ok?

    Donna x x x