Husband with terminal breast cancer

This is my first post so sorry for any incorrect terminology etc.  My husband was diagnosed and treated for breast cancer six years ago and given the all clear 18 months later.  You'll have gathered from the title that it's come back all guns blazing and has spread to the bones (spine, ribs), liver and left eye.  He's also been diagnosed with non-Hodgkins Lymphoma which is bubbling in the wings and he has a heart condition but that's the least of our worries at present.  The medical team have confirmed that it is advanced cancer, Stage 4, and so it's only a matter of time.   He's been under treatment since March of last year and has been holding his own but now things are progressing fairly rapidly.  The mets in his liver started to increase quickly recently so he was put on a regime of chemo tablets, two weeks on, one week off.  This completely knocked him for six and so he's decided to stop taking the chemo immediately and he's also stopped his heart medication.  I cannot blame him - he went from being able to enjoy life as long as he took things slowly to being sick, losing weight fast and feeling like he wanted to die whilst taking the chemo.  So now we wait.  I would appreciate any advice on how to plan for the future - should we be talking to the hospice now or is too early to discuss Macmillan nursing assistance if he wants to stay at home?  He's still up and about, driving etc so I feel it might be too early but I feel I should have a plan ready for when it's needed - because when its needed I'm not sure I'll be in a fit state to plan anything.  Advice from anyone who has been through (or is going through) something similar would be really appreciated.  Thank you.

 

  • Hi there ..

    I havnt personal expierance of end care ... but my partner nursed his late wife at home and cared for her 24/7 she passed of breast cancer ... so these are his words on what he put in place ..

    I brought her bed down stairs .. l got from (social services) and hospice nurses . They lent me an electric bed elevater to raise her up easier. They put a hook in a joist in the ceiling, to help her pull herself up by the handle grip. They also provided a camode. The council put handrails up the stars. In the bathroom they put hand rails and a plastic folding seat for the bath. In the earlier days McMillan nurses sorted out the benefits and they sent someone around the house to do this. Later l had most help from local hospice nurses. 

    If you require any medical equipment or adaptation to your home, contact the adult social services department of your local authority. They will send someone round to assess your needs. Adaptations that cost less then £1000 are free .. as on N H S UK site found on search engine .. look on that website, as they give lots of information what you can get . I E disabled facilities grant / independence at home . They put on there the question "where to find more help" it's called RICA That may come in handy . There is a mine of info for you to look at, and prepare. Hope that helps .Graham 

    I hope that is some help for you ... any other questions l can pass on to him as hes really good at that . And as ive got breast cancer now, had a mastectomy last july, my heart goes out to you both ... sending you a big hug ...  chrissie