I am writing on behalf of my mum. 

My mum was diagnosed with Chondrosarcoma very recently. She has it in the pelvis, hip and now moved to the spine very quickly. We have been told it’s terminal and extremely aggressive although we still have options and our time for choosing is running out. We’ve actually been told best to make a decision within 24 hours  

1. We don’t do anything. So we don’t know how much time will be left. Pain can get worst and that she will be on more and more drugs which will probably make her bed bound because she’ll be knocked out. The surgeon said she could enjoy what’s left  

2. Remove the bone in the hip and try the spine and keep her leg (it will be a dead leg that she won’t move) but will help pain relief. And may or may not give her more time  

3. Amputation this in best for surgery purposes but my mum is struggling at getting her head around this and is saying no straight away. She was more open when I researched prosthetics but the surgeon said most people don’t use these and didn’t make it sound positive  

With all these options they can’t give a time on any of these options but are making it sound not huge amount of time but maybe will buy a bit more time withsirgeru but not for sure  

We haven’t had any support or advice and would love to speak to someone who’s going through this or similar    . Or just other people’s thoughts

Many thanks  and best wishes 

Catherine