Preparing for Dad's Death

Hi everybody, this is my first post to the forum. I really have been enjoying responding to others because this is a good space to share emotions and struggles we are all going through. My dad was diagnosed with cancer in November and there are three tumors in his liver. They think it's bile duct cancer (cholangiocarcnoma) but aren't totally sure which makes things difficult. She has opted out of treatment and has accepted death. He gets worse every time I see him and has been sleeping a lot and can't do much compared to a month ago. He just went to a cancer treatment center a couple days ago where they helped him lower his calcium levels. When he came back he just seems to be worse off. He slept all day today and barely ate. He drank water but feels dehydrated. We think it wasn't the medication he wasn't given there, burn it's making me think about the signs to look for when the time isn't near. I don't think he hasn't too long left but hasn't not been given a time frame. I wanted to know ignore he should be seeing a doctor regularly so he know she when it's time for hospice care. He doesn't know what to do and I have no idea how any of this works. When do you know when it's time for hospice or doesn't he have to get it arranged ahead of time? Also if anyone hasn't advice for me that's went through someone havingtumors i but their liver what to expect. I'm just really lost and scare don't since I am not with him everyday.

Cassidy

  • Hello Cassc27

    so sorry for what you are going through I am dying of cancer  I wanted to know how it would progress and what to expect

    unfortunatly no one can tell me, they don't know. My district nurse rings every few weeks as I thought I was wasting her time to call in to see me she's quite young and I don't think she has a lot of experience of the dying  Which is what I wanted. I'v given that idea up and take one day at a time 

    try not to worry ask him if there is anything he wants done or any food he would like(you may have done this already )  spend the time you have just enjoying  each other's company .x

     

  • Hi Cassidy and [@Colleen70]‍, 

    I saw you were both wanting to find out what to expect when the time draws near so I just wanted to share some information we have about this on our website. It can be a challenging read though so do only go through it if you feel you are ready to do so or have someone with you when you do.

    Best wishes to you both at this tough time, 

    Steph, Cancer Chat Moderator

  • I am sorry to hear about your situation. This type of disease I feel is too comon these days, but people going through it don't get enough information about these kinds of things. Maybe my dad isn't asking enough questions, but I think the doctors are more worried about treatment and making you get better than giving resources on the end of life. I wish nothing but the best for you and hope you are well taken care of. (: Thanks for the adivice too! I try to do as much as I can when I see him on the weekends and I feel that is the only thing I can do at this time.

  • Hi Moderator Steph

    thanks have had a good read on the website

    didnt know about high calcium levels and that some people don't get pain  some (solution )

     sounded  awful I will remember to add them to my living will as no no 's  I will try very hard to do a week by week post on how I'm getting on for other people in my position to read X

  • Hi Colleen, 

    I'm glad you found the information on the website useful and doing a week by week post sounds like a great idea. We have another member, caz07‍, who shares her day to day experiences of being a carer for her husband so if you're looking for some inspiration you can have a read of her story just here.

    I'm sure our members will really appreciate reading about your experiences Colleen, especially those in a similar position to yourself like you say, so do keep us updated when you can.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hello Cassidy

    I am really sorry to hear about your father. I can understand that it’s such a difficult time for you. Like you, in August of last year my grandfather was diagnosed with terminal liver cancer. My grandfather is currently experiencing many of the same symptoms as your father; dehydration, tiredness and barely eating. I am not sure if this will come as reassurance to you but we have been told to prepare. The hospice is now involved and it has proven helpful for not only my grandfather but also the family and I feel this could help you also. 

    I think the main priority now is for you to spend as much time as you can with him and to enjoy each other’s company. Please feel free to message me :)

    Emily x

     

  • Thank you Emily, I am trying to push my dad to do hospice now. He is still working which I think is not a good thing at this time because he barely has energy to move around. Even if he doesn't pass for a while, I think hospice would make things easier. Did/does your gradfather go to routine visits with his doctors? Where they the ones who told you to start preparing? One doctor my dad saw told him he doesn't put a time stmap on patients, but I feel it's sort of important especially when dealing with this.