My Dad is Dying

Hello,

Sorry for the abrupt title.

My Dad fell ill on the 31st January, was admitted to hospital on 6th Feb and was diagnosed with pancreatic cancer (which has spread to his liver and lungs) on Monday.

He is in hospital and was moved to a side room today from the gastro ward he was on with 5 other patients who were constantly changing and being let Home. He was the sickest there by far.

He has been given “weeks to months” to live and we have seen the palliative care doctor everyday this week. A stent didn’t work due to his blood being too thin, they’re trying again on Monday but I don’t think they will as he’s getting weaker and weaker each day.

I go up to the hospital for at least three hours a day to ensure he’s fed his dinne (my mum is there for 4 hours a day before I go)but I’m feeling incredibly guilty I’m not there longer. The reason I’m not is because I feel as if he doesn’t want me there (I don’t mean this in a selfish way) and I want to do what’s right for him; but every day I get home I become so scared and sad that he’s on his own.

He was put on oxygen on Thursday and his breathing is becoming increasingly shallow and he only had two mouthfuls of his dinner today. 

We have talked about him going to a hospice but are waiting to see what happens on Monday for the second stent try. I believe they won’t want to move him and he’ll die in hospital.

i have no idea what my questions are, apart from how much longer are we going to have to go through this? He’s not in pain but seeing him so scared is killing me in it’s own way too. My sister died two years’ ago and I can’t believe I’m having to go through this again. I’m 32 years old and have no other siblings. How do you carry on with life whilst all this is going on? I work from home and am still working in the weekday mornings before I go to see him but I’m not even sure if this is the right thing to do. Am I being selfish? Am I an awful person? Should I be there 24 hours a day?

 

im sorry this all sounds so selfish

  • Hello and welcome.  This doesn't sound selfish at all.  It sounds a very frightening situation in which you are trying to do your best for your very sick Dad.  Why do you think your Dad doesn't want you there?  When my Dad was dying I just sat and talked about things that we had always talked about - by which I mean that I talked mostly and kept it fairly quiet.  Is your Dad scared of dying do you think?  Do your mum and yourself ask him about how he feels?  I realise I am just guessing here.  I know it can be hard to keep yourself calm when you are feeling distressed inside.

    I cannot see any reason why you should not continue your work from home in the mornings while your Mum is at the hospital with your Dad.  Please do not beat yourself up.  Having lost your sister two years ago I can only imagine what you are now going through. 

    As you say it is unclear what is going to happen next.   It sounds as though your Dad is slowing down gradually.  Hard as it is I think you have to just go with things as they happen.   So be kind to yourself, and work with your mum to support each other.  No, I don't think it a good idea for you to be there 24 hours a day; far too stressful and you wouldn't be helping your father ultimately. 

    I am sorry I cannot give you the clear advice you are seeking but I do want to say you are clearly doing a good job in very difficult circumstances.  If you wish you could ring the nurses here (Mon-Fri 9-5) on 0808 808 4040 or alternatively MacMillan Cancer Support on 080 808 0000 - these are both Freefone numbers.  MacMillan will advise people caring for cancer patients.  Please also keep in touch here if you would like to do so.

  • Hi, I myself have been in a situation similar to yours almost a year ago. You are by no means being selfish or an awful person. Your father most definitely appreciates you visiting him every day like you are and spending this time with him when he is ill. It will be really hard to carry on when all this is going on, but keep in mind what your father would want for you in your life. Make sure you do spend time with him and talk to him about things you may have never spoken of before, don't be afraid to try to lighten the mood by talking about some of the fun memories you have together. It's great that you're spending time with him, but I don't suggest spending all your time in the hospital. You do need to take time to yourself and take some time to relax, have a relaxing bath, listen to some music, whatever makes you feel better. Acknowledge what is going on and try to prepare yourself for what is to come, feel the emotions as they appear. Don't block out emotions, that just makes it harder in the long run, trust me. This has all happened very quickly from what you've described, so I'm guessing it has come as a bit of a shock, and you have had to adjust quickly. I won't lie, it is going to be hard. Just make sure you take care of yourself, spend time with both of your parents, your friends, and the rest of your family as you will need each other in this difficult time. I wish you the best, stay strong!
  • Hi all, I'm terminally ill with liver cancer and I've got a few months left. The hardest part was telling my two grown son's but with the help of my ex wife we managed it last week. Many tears and hugs. I consider myself blessed in that I've been given this time to sort things out and share my memories with my son's. They are recording the silly stories I made up for them as children and my memories of my rather wandering path to where I am now. But they feel so helpless, it is them who will have to watch me dying, all I can say to all relatives/children of terminally ill people is to spend time to grieve, pamper yourselves for you have the hardest job, share laughter and memories, be honest as well. Mine also understand that I need my own space and they are fine if I just say "I'm a bit tired" they know that's the cue to go. My youngest is finding it hardest as he lives in southern Germany so I message him every day. You do not need to be strong, you too can weep.Be well friends
  • It was very touching to read your post, my dad has just been taken off chemo as his liver is too damaged to cope. I live in France and although I was here today for this devastating step i'm so confused about whether to come back or not. I do know he would not want me to give up my life and I also know that he will want his own time and space but I can't help feeling selfish about getting back on that plane and disappearing again. Thanks for sharing your thoughts and good luck xxx

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    Hello, I go through a similar situation, my mother has a rare breast cancer, she was treating herself in the hospital and coming home but today she was hospitalized to start another treatment. I feel that even doing everything I can I'm being selfish, I do college full time and even if I need to rest and distract sometimes it seems that this is very wrong, because while doing other things my mother is sick and can not do the same things that I. She tells me to go out with my boyfriend and friends but every time I do it I feel terrible