Pancreatic Cancer

Hi, I thought I would write on here to speak to people who probably know how Im feeling.

My dad was in hospital for 2 months back in the summer, but has been home for about a month now.

He had two major operations which left him in ICU. Thinking that was the worst thing, yesterday it got worse. It was confirmed that he has pancreatic cancer. And the doctors gave the prognosis that without chemo he will have just a few short months & with chemo he will have on average a year. They decided he was strong enough for chemo after a lot of consideration, so he is having a round once every two weeks bascially just to make his quality of life better (if it works).

Saying I am devastated would be an understatement. My dad is and always has been my favourite person in the whole world. He has the best soul ive ever come across. How he raised me is exactly how I want to raise my children in the future. He seriously is everything I could have wished for in a dad.

Im 22 and he is only 64 so I feel like our time together is really going to be cut short. I want my dad here forever, but its just so sad thinking he wont see me graduate, wont know what job i'll have, wont see me get married and wont meet my children. And its so painful because I know he will be thinking the same. 

Please feel free to reply. Its really comforting reading through this site and seeing how many people are dealing with this like this and that are coping, bevause right now i really feel like thats impossible. 

  • Hi Katie

    I'm sorry at the age of 22 you've heard the words Stage 4 Pancreatic Cancer  On April 2, 2017 my husband 53 years old and I were sitting in an Oncologist office when the Oncologist said you have Pancreatic Cancerand and it has metastasized to your lung and liver however it is treatable not curable.  Surgery in your case is not an option.  He went on to say with Chemo three months without one year.  If you so choose Chemo we need to start immediately.  They would do one day of Chemo a week for three weeks with one week off.

    our nephew who is 30 was with us at the doctors office with us since he lived in the city where the doctor we were referred to office is.

    we went to our nephews apartment because we stayed there while meeting with Oncologist's and having blood work done.  We called my husband's father on speaker phone and our nephew told him what the oncologist said. My husband looked at me and said "did you know the oncologist meant I only had three months to live without Chemo and up to one year to live with Chemo?"  I said yes.  The next phone calls were to our children.  Two boys 23 years old and a 21 year old daughter.

    we had been married 13 years and telling our children was very difficult because my husband had never been sick a day in his life.

    I pray you are not his only caregiver.  Pancreatic Cancer is ugly.  I was fortunate that we were empty nesters.  I had to learn definitions to words I had never heard before and trying to arrange his meds around meal times.  While doing this I couldn't cry because it would upset him.  If our children had still lived at home I don't know how I would have cared for him while and trying to remind our children to keep the faith only God knows how much time a person has left.

    we were in and out of the hospital due to complications.  Trying to keep our Chemo appointments but we're told several times his platelet count was to low for Chemo.

    on November 2, 2017 my husband passed away at home with us by his side.  So when I said Pancreatic Cancer is ugly I meant it because I saw it every day.

    if you need someone who understands exactly what you are going thru I'm here for you.  You can talk to me, ask questions, pray with you or for your father, or someone to cry with please know I'm here and you can lean on me or yell at me.  Trust me having someone to yell at does help.

     

     

  • Hi There.

    I am so so sorry for your loss, its such a sad and rubbish thing to go through but thank you for taking the time to share your story with me.

    Its all just so hard to process isnt it. Makes me wonder what I actually had to worry about before all of this. Makes everything else seem so unimportant.

    I hope you and your children are doing okay, or as well as you possible can be doing in a time like this.

    Thank you so much for your kind words, it honestly means alot to me knowing theres people like you out there who are willing to help me through this.

     

  • Hello there, thank you so much for leaving me a message. I honestly really appreciate your kind words.

    Im so so sorry for your loss of your dad. Youre so brave going through all of that and still having the courage to be with him right till the end. Im sure he would be so proud of you.

    Its amazing how many people have similar stories & i feel the same, its so comforting having people to speak to who understand exactly.

    hopefully speak soon xx

  • Hello.

    I'm so sorry for your loss, beyond rubbish isnt it. I know its one of those things that will always be crap but when you feel like times been cut so short its even worse.

    Did your mum pass recently? Im sure she'd be so proud of you and happy for you with all of your achievements at law school.

    thank you for the message, hopefully we can chat some more soon x

  • Hello, I hope u don’t mind me asking, but I’m eager to know.. my mum was diagnosed with stage 4 inoperable pancreas cancer that has spread to her liver and walls of her stomach, they offered her chemo saying only a handful of years if it all goes well. She hasn’t eaten for months prior to the diagnosis - our GP said ‘u have an infection in ur body but we just don’t know where, I’ve referred u to a specialist’ we were waiting weeks until I forced her to go to the hospital, they did their scans - found the mass and called her in the following week to confirm it was cancer. For about a week after her diagnosis she was going really well drinking her energy drinks for strength but her mouth was starting to blister up and her tongue was red raw, so she physically couldn’t drink those anymore, we went for our first chemo talk on Wednesday but she is too weak to start It, they said it’s thrush of the mouth, and given her meds to clear it and steroids to increase her appetite hopefully to build her strength ready to go back in two weeks to start chemo, she still isn’t eating and like u say cancer is ugly to see it eating away at them, did ur husband start chemo immediately? Was he bein sick all the time unable to hold down food, I just feel like we haven’t had the best start to the chemo process and it’s hard to keep up hope, like yourself I can’t cry in front of her I have to be strong.. I just hope she’s not giving up.. she’s had 3 heart attacks and survived and now this is killing her.. she’s only 64 and I’ve just turned 30 and an only child it’s horrible seeing both my parents go through this

  • Hi Roberts1

    i wish I had better outlook to offer.  My husband started Chemo immediately but we also ran into complications.  After his first round of chemo he was hospitalized with blood clots.  Yes we were given meds and steroids but they didn't help. The thing is no one talks a lot about pancreatic cancer and I really wish when my husband was diagnosed I had someone who had been through it to talk to.

    my husband also developed thrush which was one of the many challenges no one told me might happen.  We only finished two rounds of chemo before my husband passed.  We encountered thrush, blood clots which I ended up having to give him daily shots for, and finally diabetes.  These can all occur in Pancreatic cancer patients.

    I want to be honest with you.  I understand you can't cry in front of her because I couldn't do that with my husband either.  The fact that someone has given hope of years with chemo is surprising to me.  However only God knows when it's our time.  My husband had been strong never sick a day in his life until his stomach and back started hurting.  With pancreatic cancer no one that I've spoken to had a good start with chemo.  It sounds like your mother is a wonderful and tough woman trying to fight this ugly thing that is running through her body. She is not giving up it's the cancer.  We need the pancreatic Cancer is the resin she can't eat or

    just tell her everyday you love her don't try to force food or water on her.  Just put it within reach.  Make her as comfortable as possible and if she seems really ill one day don't call your family physician call the oncologist and insist you bring her to his office to see her even if she sneezes or gets really disoriented and is not herself insist the oncologist see's her.  Demand it or just show up at his office if you have to.  I carried my husband in on several different occasions until the oncologist knew we had done everything.  Even if she doesn't finish a round of chemo if she seems different and needs a doctor make sure the oncologist is the doctor that's called.  An oncologist is the only doctor that is not going to stop fighting until it's time an ER or family doctor is gonna just push more meds an oncologist is gonna order all the right tests.

    i had seven months it wasn't enough time but in the end I know I did everything I could to make my husband comfortable and let him know when he was ready to go I would be ok.  It was important for him to know hear me say that.

    if you have more questions or need someone who understands or if you encounter anything your not sure of I'm here.

    my name is Darlynn and even when a doctor explains something to you it helps to repeat to someone else to help you get a fresh perspective on it.  Just know your mother is not giving up.  She is doing her best.