Dying with cancer

I'm not sure if it is ok to talk about this but I feel I was not given enough information about dying of cancer. How can we help our loved ones if we don't know what we are going to face. Go and live your life my husband was told and two months later he died a horrible death. I did my best for him as he wanted to be at home but I am left with such a feeling of "should have done better " if only I had been for warned of what was to come and shown what to do. Eight months later and I cannot stop crying and get this out of my mind. Those last eight weeks or so were awful and it was hard for us to make the best of the precious time we knew we had left together. Now I know about anaemia, cachexia, morphine side effects etc. and  that there is not much help at 2am in the morning  or at weekends when you are frightened. 

  • Hi Welshlynn, I know exactly where your coming from . I lost my husband 8 weeks ago and watched him suffer so much when he passed away. I'm tormented by this so much. Please feel free to private message me. X
  • Hello Welshlynn, I am sorry to read of your situation. I cared for my late husband during his 6 month battle with lung cancer. The same as you we had an awful 2 months before he died and I still have visions of him choking, sometimes unable to swallow at all and then all the blood. The first episode we had like this was at midnight and me being on my own with him I rang out of hours doctor only to be told that as he had lung cancer this was normal and if I was still worried in the morning to contact my GP which I did and he just told me yes this is just the tumour pressing on blood vessels and not to be alarmed. So, now that the carpet was absolutely ruined with blood and vomit, I ordered a supply of disposable sick bowls which we had to have everywhere. We just had weekly visits from the lovely nurses until 3 weeks before hubby died when I had to ask if we could have more which was a relief. We also had out of normal hours nurses who worked until 11pm who came and gave him injections and then the rest of the night I had to ring for somebody, sometimes having to wait up to 2 hours, which is a long time when somebody is shouting with pain. The last 4 days happened to include the weekend so won't say any more. Cancer doesn't have a weekend break !!! It was my dear husband's wish to spend his last days at home and bless him he kept telling me what a lovely "nurse" I was but I do think that because I was his carer, I didn't feel like his wife any more. I am not so sure that I will want to spend my last days at home. He was only 61, but I am glad that he is now at peace.

    Sending kind regards to you Welshlynn.

    Lynne.

  • Hello Malro. Just want to say I am thinking of you. It is very early days for you and I can understand your torment. Please keep writing.

    Sending kind thoughts to you.

    Lynne.

  • Thanks for your thoughts Lynne, my husband was only 61 also, I still can't believe how in the space of a few weeks he went downhill so rapidly. Like you my husband kept thanking me for taking care of him but I wouldn't have had it any other way.  I managed to get him home for his last few days, although at the time they thought he had weeks left. I wouldn't have had it any other way as he hated being in hospital  ( he was rushed in for a transfusion and they wanted to keep him in) I can honestly say his last few days were horrendous and I can't get the images out of my mind. To see the person you love suffering so much and feeling so helpless is truly heartbreaking, he was fighting so hard to stay with us. I just miss him so much. Loving thoughts to you Lynne and indeed everyone who is having to deal with this cruel disease. Xx