My dad is terminal and I feel lost and confused

Hi, 

My dad is the most amazing, positive, happy and loving person in my life and I can't imagine what life will be like without him here. I have a big family but me and my dad are like two peas in a pod, we can sit in silence all afternoon and I feel so peaceful and content with him even if we don't fill the hours with conversation. 

He's always been an amazing grandad to my brother and sisters children and for years I couldn't wait until I could finally have a child so they could have him as a grandad too. After 3 difficult years that my parents supported me and my husband through my daughter was born. Her and my dad have an amazing relationship and his face lights up when he see's her. He makes her laugh more than anyone and crawls on the floor to play with her despite being seriously ill. I'm terrified that she will grow up and not remember what an amazing man her grandad is. I'll always tell her but I want her to remember and I'm devastated that the chance may have been taken away from her because of cancer. 

We were told in Feb that my dads kidney cancer had returned, it's now spread to his lungs, pelvis and lymph nodes. He's had radiotherapy and is on injections to strengthen his bones and attends regular scans to monitor the growth. We know he's terminal but they can't say how long he will be with us. I can see he's in pain but he tries not to show it, he has other health issues and it's hard to see his body give up when he has such determination to live. Why didn't doctors pick up the cancer earlier when something could have been done

At first my dad was certain he wouldn't die, that something would happen and he'd be cured. Recently he's said things that have made me realise that he's started to accept his fate. I don't feel ready to lose him, and can't imagine him not being here to hug me when I'm sad, make me smile or play with my daughter.

I feel such a mix of emotions and I'm not sure what to do with them or how to let them out. With my daughter being so young I look forward to her first Christmas, birthday, holiday ect but then it hits me that my dad may not be here to share in these moments. I feel like I'm grieving already when he's still here then feel so guilty. 

I'm sorry for the long post, I just had to get some of my confusing thoughts out.

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    Hi Poppet,

    It is always so difficult tending to a loved one with a terminal diagnosis. Cancer affects everyone in the family, not just the patient. The emotions you describe are perfectly normal. In situations like this we experience a whole raft of emotions and can experience several of them in the one day.

    It is heartbreaking to watch a loved one decline in health so quickly and to see the acceptance of his fate finally take over from his determination to survive.

    It is frustrating not being able to help him more, but just be there for him, let him know how much he’s loved and do everything you can to make him as comfortable as you can.

    I’m sure that like many of us you have found yourself crying a lot. This is good as letting the tears flow helps to reduce stress – just try not to let your Dad see you cry.

    I lost my Mum to cancer in 1997 and I still miss her every day. It does get easier to cope with as time passes, but for the moment just take things day-by-day. Try not to look at the bigger picture – that’s too much for anyone to manage. If your Dad is fit enough, try to make some memories with him. Would he like to write a letter to your daughter that she could read in years to come?

    I am so glad to hear that you have managed to have your daughter despite the difficulties. Some members of my own family have been lucky in that way too. I have a nephew born after 12 years of marriage and he is so precious.

    I notice that you have only joined the forum recently. There is always someone here if you want to talk and you will find it a great help in getting you through hard times. Keep us posted on your Dad’s progress.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, Thank you for your response, it is comforting to hear how other people have coped with loss. I find terminal illness very strange as you can prepare (or Atleast try) for what's to come. I know when it does happen though it will be just as big of a shock than if there was an accident. At the moment he's relatively mobile so whilst I'm on maternity leave we've been spending a lot of time together, going for days out and taking lots of pictures. I feel very lucky to be off work this year so I can make the most of whatever time we have together. I've definitely cried a lot but I've been strong in front of my dad, he's so positive and I wouldn't want how I'm feeling to dampen that for him. I find it harder to control my emotions when I'm on my own and it's quiet, just before bed is worst and I find it hard to sleep as I panic imagining what it will be like for him. I've been thinking I'd like him to write my daughter a letter but I'm not sure how to broach the subject? Most people in my family seem to be in denial that my dad will die even though he's come to accept it. I don't want to seem I'm being morbid or giving up hope when everyone else seems so upbeat. Or perhaps their not in denial but no body will talk to one another incase they get upset. He gets his latest scan results next week so fingers crossed the cancer hasn't spread any more. Did your mum open up to you when she was ill about how she was feeling, any fears or worries? xxx
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    Hi Poppet,

    It sounds as if you have worked things out fairly well. You have picked a good time to be pregnant and it must be great to be able to spend some quality time with your Dad. You have got the idea of how to best deal with a terminal illness. Instead of dwelling on the bigger picture, which is too much for any individual to cope with. You can make memories together, which will be so precious after he has passed, particularly when you have your photographs to illustrate the good times too.

    Perhaps you could introduce the topic of writing a letter to your daughter in the third party? Maybe you could discuss whether there is anything in particular he would like to do before he passes and somewhere drop in to the conversation that some people like to write letters to those left behind? You could leave him to think about the idea and ask him directly a few days later.

    It is always difficult for families when communication breaks down. It is so much easier when you can all discuss things together.

    My Mum was a very private person. She was always terrified of dying and being buried alive. We solved that by cremating her. She gradually opened up as her illness progressed, but she sadly took a lot of secrets with her when she went.

    I hope that the scan results look good next week.

    Kind regards,

    Jolamine xx

     

  • [[ ]]I am in exactly the same boat.. my Dad's cancer has spread right through his body and we have been told 3-6 months maximum but when I see how fast he's deteriorating I fear it's less and it's heartbreaking. Me and my Dad are like the cutest duo and I just can't imagine what I will do without him. I'm still drawing him pictures and don't think I'll ever stop even when he's left. I feel like you like I'm grieving even though he's still here and then I get into denial like it's all a bad dream. This is the hardest thing ever and I feel so lonely and lost x

  • Hi Poppet, 

    This is undoubtedly a *** time that you're going through, I can only reinforce what the other lovely posters have been saying about writing a letter  (if he's still up to it) as that's a lush idea. I lost my dad in November last year from terminal cancer and had only wished I'd asked what he would like to do! Had he had the strength I know he would have loved to have done something like that. I know at this point it will be inevitable BUT it's all about quality not quantity, please, please spend time doing things which will enrich your families life. I know it's absolutely awful, but please know it gets a little easier as time goes by. I promise you and your family will get through this, and you will all be very much in my thoughts. If you have any questions give me a message and I'll do my best to give my time and support.

    The very best of wishes,

    Georgia xxxx

  • Hi Jolamine, 

    Thank you for your reply.

    Although I know the inevitable will happen, I'm not sure how to broach the subject with my dad. He's a very jokey person and although I think he's accepted he's dieing he says things in a humorous way to make light of things. So I'm a bit scared to just bring it up incase I upset him or if I get upset infront of him. I suppose talking about it makes it more real and that's what I'm scared of. 

    I'm so sorry you lost your mum xxx

  • Hi Kittypink,

    I'm so sorry for what you and your family are going through. Having a timescale put on must feel terrifying, I find it's difficult as the things you would look forward to like Christmas ect you now fear as the person you love may not be here. 

    I think sometimes when your so close with someone you notice more of a decline because you pick up on small changes and difficulties that outsiders may not notice. Do you have other family members to help support you? 

    Have you spoken to your dad about what's going to happen and how he feels? I wish I could but I'm just to scared incase I can't hold it in anymore, especially when I'm with him.

    Its strange that you draw, my dad has always loved drawing and I've actually just started again, have you found it a good release for your stress an emotions? I'm not very good but I've found it's helped to do something creative. 

    Its so confusing isn't it, feeling like your grieving when the person is still here. Like you, a lot of the time I'm ok and feel like I'm living in a bubble of denial, then something comes along and happens to burst it and the grief overwhelms me again. 

    Dont feel alone, we can support each other through this. I've definitely found writing my thoughts on here has helped as atleast everything isn't just swirling in my brain. It also helps to know your not alone and the way your feeling is normal. X

  • Hi Georgia,

    Thank you so much for your reply, reading it's made me a bit teary. I'm so sorry to hear about your dad, had he been ill for long? 

    If you don't mind me asking, did your dad pass at home, hospital or hospice? I know my dads spoke to my mum about what he wants but I'm not sure she will know how to cope when the time comes. Did you talk that type of thing through with your dad? My dads such a positive person and always has a laugh so I'm worried about talking to him about that sort of thing and I don't want my family to think I'm being overly morbid. I just like to know what's ahead so I can prepare myself but other times I just want to bury my head. 

    i definitely would like him to write a letter but I'm just no sure how to broach the subject. 

    Thank you for your support, if you ever need a chat I'm here xxx

  • Hi,

    Aw I'm so sorry didn't want to make you feel worse! 

    I'd say from finding out he had cancer and him passing was around 13 months. It was exceptionally aggressive  ( everyone is completely different and you will probably have much more time with your dad) we took him to live with his mam for a few months as he was getting so frustrated in hospital. Then when he got really sick we realised there was no choice but to put him in a hospice as he would be cared best there. Towards the end of his life he was kept sedated for the final few days as he struggles with everybody to get out the bed and wasn't all there. Can't even imagine what he was going through but it was sad to witness.

    The fact your dad is still positive is so important and it's those times spent laughing together you'll remember most (oppose to him being depressed and rejecting visitors etc) so that's a good sign! But I understand you'd like him to know your thoughts and any reservations.

    Personally we didn't bring it up, we just took everything day by day and made the most of the time we had left together, we knew he was going to die because as soon as he was sedated he wasn't going to come back round again. His decline was very quick and we all just sensed that time was running out so we didn't really want to bring it up with him or other members of family but I did speak to it in detail with my sister and I think that's the difference, it sounds like no one in your family wants to broach that subject which can be incredibly hard on yourself as you want to be communicative about it. 

    Have you spoken to your mum about the letter? She might realise why it's so important to you and support you when you bring it up to your dad? 

    Let me know how it goes, I'll have a think about how you might be able to subtly bring up the letter to your dad!  Xxx

  • I've always drawn for my dad! He's such an inspiration and our lfunny relationship and closeness has inspired so much of my art! Dad loves it and it always makes him smile. He must have a drawer full of the stuff. I find being creative really helps me.. I'm crocheting a sunflower wall hanging for him too even though we're obviously living day to day. He's rather confused and lost now so it's not really possible to talk to him about stuff but I'm visiting today and I'll just be there.. taking him this one today [[ ]]