lung cancer

Hello

I want to talk to someone who has experience of lung cancer. I have had the most devastating two weeks. Two sundays ago we were due to all go for a family meal. 

I rang my mum to say what time we would pick her up. She said she didnt feel well enough as she was breathless. I was really worried and begged her to ring 111. She did and was rushed to hospital. I honestly thought she had a bad chest infection. She wanted me to still have rhe meal. My daughters rushed to the hospital and i followed later. She wasnt started on antibiotics. I was getting more worried. She had an xray and they then wanted a ct scan. On the weds we were all called to the hospital. The consultant came in and told us all and mum that she had lung cancer. At that point mum was on a small amount of oxygen. But sitting in bed reading a paper.

The dr said he needed to do a bronchoscopy to find out which cell type. Then mum could hopefully have radiotherapy. 

Mum was positive about this. She had the broncoscopy. I rang all morning to see if she was back from theatre. Eventually she came back. I spoke to her and visited later. Mum didnt feel too good. She developed a chest infection and ended up on hi flow oxygen. She rapidly declined and passed away on may 18th. I am absolutely beside myself with grief!! She adopted me and was my best friend!! My rock!! She is a grandmother and great grandmother. We are all in pieces!!! She had been to her gp with various symptoms!! Im going to talk through her medical notes with her go. 

Please can you all tell me of your personal experiences with lung cancer.

 

Thankyou!!!

Maria.

  • So sorry for your loss, lung cancer is difficult, it affects your breathing and can cause anxiety, it's tough to  keep positive, although that's the only way to go, processing all the info is difficult, I paid for my records as I felt let down by the hospital after repeated referrals from my gp I had to write a letter of complaint before I was taken seriously and finally diagnosed, I think the shock is hard to deal with, take your time process everything and speak to cancer charities about counselling they are very good hope this helps xx

  • My mum passed away on 23 April with lung cancer.  She was diagnosed in June 2016.  She had radiotherapy in September and the tumor in her lung had shrunk.  She got taken to hospital in January 2017 with a chest infection and never came home again.  She was given IV antibiotics and fluids and the infection would clear and she was back to her old self.  A few days later it would happen again...and again.  She rapidly went downhill and I got told on 7 April that she was terminal and didn't have long to live.  I couldn't and still dont understand any of it as I got told the cancer had not spread and was shrinking. 

    The hospital stopped feeding my mum food and she was just on fluids.  After a week or so with this they stopped giving her fluids.  I had to sit with her day in and watch her fade away from a 9 stone woman to under 4 stone.  She also lost her ability to communicate.  I know she could hear and see me but she could not move or speak.  They have no idea why as they said she was too weak to move for tests.  

    Like you i'm devastated and cry constantly.  I have no happy thoughts of my mum - all I think about is her last 2 weeks and how she looked.  I dont know how to get the image out my head. 

  • Hello.

    I do apologise for taking so long to reply! Im so sorry for your experience too! We put all our trust in medical professionals. But should we??

    I am beating myself up over my mums death! For the past year or more she has been having various symptoms. She has been backwards and forwards to the doctor. I could hear her chest was bad over the telephone and just being near her!! Yet when she went to her gp they said her chest was clear!!!

    She has been experiencing decreased apetite and terrible tiredness. She has been to her gp who prescribed anti depressants!! Until reading about lung cancer i didnt realise that you can get problems with your hands! Such as numbness. Pain. Clubbing of fingers. Swelling!! She had this too! Guess what they put it down to carpal tunnel!! 

    My mum was a beautiful soul! She adopted me and i owe my life to her. She was very clever. A wonderful cook. She had had her own businesses when she was working. She helped everyone  Friends. Neighbours. Of course family! My children idolised her! She was never one to complain. She went to the doctors with what i now realise were red flag symptoms!!! 

    Today is her funeral!! I am dreading it. But i am doing a reading and a poem i have written myself. 

    I really feel i need to raise awareness of my mothers story. When she was admitted to hospital. She was talking and walking. But after the broncoscopy that is when she got really ill!! She wanted to go home after the broncoscopy. She adored her home and her little cat. I wish they hadnt performed the broncoscopy. That is what declined her rapidly! It caused infection. I know people have said. But if your mother had come home. The cancer would have got worse and she would have suffered. But she could have had home oxygen and enjoyed her home and family a little more.

    Next week i am having a face to face meeting with her gp. There are so many questions i need to ask!