My dad has got terminal pancreatic cancer

My dad was diagnosed in February with incurable pancreatic cancer it has spread to his liver. I live near my mum & dad and my one sibling my brother lives 140 miles away. I have a really tough job 2 kids and a mega busy life and am finding it hard to support my mum. She is struggling to deal with my dads deteriorating psychological state. His symptoms are that he has got a very swollen abdomen which is uncomfortable. He is on Oxycodone slow release tablets 15mg twice a day. He is having palliative chemotherapy. My dad is 73 and my mum is 70. They have run their own business for 40 years and still work now. My husband has recently taken over the business so that is taking the strain off my parents. I am dreading what is to come, the deterioration. It's heartbreaking. What are your experiences of this dreadful disease? 

  • Unfortunatly no chemo for my husband, just too poorly. Don't think he will have any more.  Fingers crossed for your sister next week. 

     

  • My Dad was a similar tragic tale to many others on here. He was diagnosed with cancer on 20th Novermber 2016 and he died on 12 Dec 2016. He fell ill late September. He had queezy stomach, cold sweats and had no energy. He was told by the GP he had a chest infection. He was then told by the GP he had pneumonia, and after that was told by the same GP he had a partially collapsed lung. He developed shoulder pains also. He was waiting for a specialist hospital appointment after he grew weaker and weaker and began to lose weight when he collapsed in pain and his partner had to call an ambulance for him. They then diagnosed him in hospital with metastatic cancer in his liver, lungs, stomach, adrenal glands, probably originating from the pancreas. He was 68, but he was fit and active. He had just spent the summer building himself a conservatory. We thought the shoulder pain was something to do with him overdoing it physically from the conservatory project. His GP actually said to him when performing tests "we've ruled out cancer". The hospital treatment was poor. He was put on a geriatic ward instead of an oncology ward. He was with men aged 80, 90 etc. who were senile and yelling. He couldn't sleep at night because of the noise they would make, and another patient who was senile would wander over to my dad's bed during the night and begin to mess with his possessions. My Dad would have to tell him to go back to his own bed. We didn't see the oncologist once. We saw one junior doctor, once. My sister and I both lived 125/300 miles away respectively, so while he was ill we weren't there to see how severe his symptoms were. We knew he was ill, but our mom, over the same period was in intensive care with a brain hemmorhage (they divorced in the 90's). We just thought Dad had some sort of chest infection. He was always the healthy one, the one we didn't have to worry about. Our mom pulled through and made a near full recovery (although her personality is a little different now). Dad died in a hospice, with me, my sister and his partner there. He deserved so much more from what should have been his retirement years. He was the most humble, kind man, with a silly and sometimes mischevous sense of humour. He really was a special guy.

    Best wishes to anyone else having to deal with this diagnosis.

  • Hi

    It is just a dreadful disease that just goes undetected for so long. 

    Following my last post my husband just went downhill so quickly and passed away on 17th March. It is absolutely dreadful but the success rates of curing it are just so low it is unbearable. I have read more about it since he has passed away than when he was here as I couldn't face it so my understanding is better but it certainly doesnt make it any easier. Thank you for you reply.

  • my best friend has just been told she has pancreatic cancer.  It is advanced and she has just had her first  round of chemo.  |She is due her second  round next week.  She is 66.  What are the chances  for her.

  • I am so sorry to hear your news.  It is a dreadful dreadful disease that goes undetected until the time it is normally too late. I would like to give you hope as our Consultant said the one day when I asked him "I have hope for all my patients".  Unfortunately it wasn't to be for my lovely husband but I held on to the hope that a small percentage do have several years left if the treatment works.   My husband unfortunately was also advanced and chemo didn't work as it gave him other problems preventing having it several weeks.  My heart goes out to you and hope she is successful.  Please ask if you want any other advice.

  • Hi so on April 30 my dad who is 53 my sister who is 21 and me im 17 had news that my mum who's 50 had pancreatic cancer and we were all shocked as my mum doesnt have cancer in her family history on her side but my dad does and he's had bladder cancer and skin cancer both remove with surgery and now my dad is all clear but then we got more news that my mum was terminal and it spreaf to her stomach lining and that ended up destroying my dad and me and we were told she had months left to live then when we realised with chemo she could live further than what she was told but now we gpt told it was spreading even more rapidly and now they changed their verdict to weeks to live instead of months. Im just thinking can she still live longer than the weeks they said she had? Coz im not ready to loose my mum at 17 

  • So so sorry to hear your sad news. It is a vile disease.  There is always hope and you have to hang on to that.  Spend as much time with her as you can and enjoy her company.   

  • Hi, just read your post.  When you said that you thought your sister was suffering from a virus, please could you explain her symptoms. 

  • So sorry to hear about your mum. It must be devastating for you all.  Please can I ask what your mum's symptoms were.  I am awaiting for a diagnosis myself. 

  • Hi everyone, 

    I have just been reading the previous posts and really sorry to hear some of the stories and hope you are all finding peace in your own ways. My nan who is 86 has just been diagnosed with pancreatic cancer which has spread to her liver. They have offered biospy to confirm the stage etc however they are confident as the growths are large and on her liver and with her loosing weight drastically that it is stage 4. They can't offer treatment or operations due to her age and they do not think she will survive the procedures. We don't know how long we have left with her but just wondering how long people had with their loved ones before they left us. Is there anything I can do for her that would make her more comfortable? Anyone have any advice? Thank you

    K