Hi my mum 67 was diagnosed with stage 4 pancreatic cancer in June 2015, with mets to liver. Prognosis was bleak - she could not have surgery and was placed on pallative chemo. After 9 rounds of pallative chemo mets had disappeared from her liver and the Tumor had shrunk by 80% - to date it has laid dormant - but to us dormancy is as good as remission. We take each day a step at a time. Some are positive and upbeat - some are the pits - but remember all you can do is try your best - I have told my story as we come on here looking for hope and inspiration X - forgot to add - I live near my mum - she still works fulltime and my brother lives far away - you will find strength x

hi, this is the most positive thing I have read reguarding pancreatic cancer, my dad was diagnosed December (2018) and starts his first round of chemo today, is your mothers still dormant ? Xx

Hi, 

My mum passed away is October,It was very quick,she wasnt in pain and only went down hill a couple of days before she passed. She was at home and still talking to us an hour before she died.

kind regards xx

I’m so very sorry for your loss, im so glad she wasn’t in any pain and pasted peacefully. My dads chemo has been postponed as he developed jaundice the morning he was due to start and had the stent put in the following day, we are waiting for the date to start chemo we just want time as much time as possible with him it’s so devastating sending lots of love your way and I’m sure your mom is with you in spirit xxxx

Hi 

Sadly my Dad passed away on 18 jan 19 after being diagnosed on 01 nov 18. Dad spent half of the time in hospital and was never well enough for chemo. We got to spend Xmas with him thankfully. He spent his last week in a hospice and the daily decline was rapid. Such a cruel debilitating painful disease. I am currently raising money for Pancreatic research. Trying to make a difference. 

Sarah

bless you for raising money I have also been thinking of ways to raise money for research it really is a cruel disease, my dad is only 55 and I honestly don’t know how we will cope without him he is so loved, I’m so sorry for your loss xxx

I’m so sorry you are going through this too, your poor Dad it’s truly awful. We feel like we have been robbed, Dad was only 67. I created a just giving page and we had the funeral on wed just gone and we shared the details with our friends and family and also had a donation box. It makes me feel like I’m doing something. Dad was so loved there were so many family and friends celebrating Dads life, he would have been in his element. I would also like to run a half marathon this year and raise money that way when my heads a bit straighter. 

I understand what you’re going through, it’s so very tough.

xx

I think what you are doing in your dads memory is amazing, completely relate to the feeling of being robbed as I feel the exact same, my dad was taken into hospital lastnight with an infection due to them putting stent in so is on a antibiotic drip very unwell if anyone on here is religious please could you pray for him, sending love to you and your family and keep being amazing in your wonderful dads memory xxx

Sorry to hear he’s in hospital. My Dad also had a stent put in liver due to an infection and he was also on an antibiotic drip. It took a while but he managed to get over the infection and was discharged from hospital in time for Christmas. So sending love and positive thoughts to your Dad and you and your family. Thinking of you xxxx

Thankyou so much it really does help having support from someone who completely understands, how long did it take for him to get over the infection? We just want him strong enough to be able to have chemotherapy it seems so out of reach at the moment with these hurdles, he has a phobia of hospitals so is having a really tough time being in there at the moment, I’m so glad you got to spend Christmas with your dad bless him and bless you for your comforting words, I’m really struggling to communicate my fears with my family as we are all trying to remain strong for each other and nobody wants to upset each other as I’m sure you’ll understand, will keep you posted xxx

My Dads condition was quite complicated but he had an infection in his liver due to blocked bile duct before he went into hospital. He was in hospital overall for 3 weeks but it was almost a week before they could operate to insert the stent and then he was about 5 days on an antibiotic drip. Overall he was in hospital 3 weeks. It sounds like your Dads case is Sightly different, but with a good dose of strong antibiotics hopefully he can fight this. He’s definitely in the right place. Hope today’s a better today for you all xxxxx

My Dads condition was quite complicated but he had an infection in his liver due to blocked bile duct before he went into hospital. He was in hospital overall for 3 weeks but it was almost a week before they could operate to insert the stent and then he was about 5 days on an antibiotic drip. Overall he was in hospital 3 weeks. It sounds like your Dads case is Sightly different, but with a good dose of strong antibiotics hopefully he can fight this. He’s definitely in the right place. Hope today’s a better today for you all xxxxx

yes slightly different the infection was caused by the stent it was actually sepsis and we were told if my mum hadn’t called ambulance when she did he may not have woken up, he came out of hospital lastnight and if all is well he starts chemo next Monday but he has lost weight the last week so he can only have 2 types of chemo now not 3 as he isn’t strong enough, he’s been confused recently coming out with strange things but they say it was due to the infection but understandably his mood is very low and he is sleeping most of the time which is concerning as I’m aware this is an end stage so hoping he is strong enough for the chemo next week, just thought I would give you an update once again thankyou for keeping us in your thoughts and I hope your ok xxxx

just wanted to give a positive update, it’s been a really good couple of days he seems over the worst of infection, he’s out of bed and dressed! Enjoying time with my mum and has eaten a proper meal for the first time since December and he has no pain today ! I could burst with happiness seeing him looking so much better and happier, chemo due to start Monday! Today’s a good day ️

hi everyone,

just wanted to give a brief update, my dad started the chemo and has so far had 3 rounds, he is coping amazing so far kept his hair, no sickness, just very tired for a few days while having the chemo. His side affects of cancer has reduced and he has his digestion under control reguarding food / toilet which was one of the biggest problems for him also the pain has reduced not to say he still doesn’t get the pain but certainly not as severe, he has a ct scan on April the 3rd to compare tumour sizes so will keep you updated but he really is doing really well, lots of love to you all ️ ️ ️

Thanks for sharing this good news, very glad to hear your  dad is responding so well to chemo and hope he continues to grow stronger. My dad was diagnosed just under a week ago with stage 4 pancreatic cancer, spread to his liver and bowel lining. He just started having some stomach pains a month previous which his GP put down to polyps but further tests lead us to this. It’s too advanced for surgery. We get his liver biopsy results on Saturday and more guidance from his oncologist.

its been a huge shock to us all as he is 59 and healthy, approaching retirement and the kindest man in the entire world. I’m 27 and furious that my dad is going through this and that his life expectancy is so low. I’ve moved back in with my parents and I’m dreading going back to work as I want to spend every minute I can with him.

He’s had sickness, pain and tiredness this week with the morphine and other meds he’s on. Hoping he starts treatment soon and we get good results. Worried he will struggle with chemo so hearing that it hasn’t been bad for your dad puts my mind at ease a little.

I’m so sorry your going through this I can relate to the feeling of feeling robbed and angry I feel the exact same way, my dad has had 5 rounds of chemo and the ct scan after 3 rounds showed it was shrinking ! The cancer itself is stable but he was rushed to hospital yesterday as he has developed pneumonia and sepsis likely caused from chemo he’s currently on oxygen yesterday was touch and go but he’s such a fighter and wants to live so badly he is improving we think they got it in time and he’s on a massive dose of antibiotics, we love him so much and if love alone could keep someone on this earth he would love forever how I wish this was possible, I really sympathise with you and your family it’s hell just cherish him and try and make happy memories there will be days that are really tough but enjoy the moments that are good please keep me updated as I will you, sending so much love and best wishes to you and your dad xxx

just another little update after a very scary few days in hospital with my dad he has pulled through and fought off the infection the consultant said he should be ok to come home tomorrow, he is today back to his funny chirpy self and it’s amazing to see, this is the second time he has had sepsis in the last few months but he is here to tell the tale, today’s a good day thinking of you all xxx

how are things ? X

Glad to hear your dads back to normal and home. It’s been a tough week here, dads been very sick with his medication. He can’t keep his food or pain meds down so he’s very weak at the moment. My mums taking him into hospital so they can get his strength up as he’s due to start chemo on Wednesday and we don’t want it to be put off.

I’m very frightened and can tell my dad is as well which makes it so much worse. Just can’t believe this is happening but I know reading everyone else’s messages on here it is happening to so many people. 

hi, how is your dad now? Did he start chemo ? I still feel as though it’s a nightmare I’m going to wake up from it still doesn’t feel real to me either so I suppose it must be normal to feel like this, my dad went from being terrified ( which was awful ) to denial he doesn’t believe he is going to die, and I think this is his way of dealing with it and it’s helping him, sometimes coming to terms with things doesn’t help and isn’t necessary for the time being, this is just his way, cling on to any happy moments I know there probably aren’t many at the moment but when there is cherish it and hang on to it, I also find distraction helps even if it’s just conversations, normal , in-depth , funny anything just without bringing in the c word. My friend is a nurse and she came to see me the other day and I broke down, in almost an overwhelming panic and she said to me where there is life there is hope ( Stephan Hawkins ) and I tell myself that now whenever I feel I’m falling apart, please send my love to your dad and mum and a big hug from me to you .. stay strong, or cry whatever you need to do to get through this difficult time, as soon as chemo starts to take hold and hopefully shrink (the *** ) as my dad’s oncologist quoted your dads symptoms should reduce a lot, please keep me updated xxx

Hey, sorry for the late reply. Dads not been doing so well to be honest, he had two rounds of chemo but it made him too poorly so the oncologist recommended he stopped. He’s been home and his symptoms have been under control for the few days, but we’ve had to start making arrangements as he’s getting weaker. 

Everything has happened so quickly I feel I’ve barely had time to take it in. I hope your dad is still doing well and the chemo has good results, do and say anything you want to now, don’t put it off for a better day. Thanks for your kind words in these dark times xxx