need to unload everything that is upsetting me

I am so stressed out .

this is the only place in the worl where i think i may be able to express what is upsetting me.

if you are squeemish - - stop reading now.  __<<< may triggert >>>

what is upsetting me: 

1. upset that cardiology told everyone but me that I was likely to die any minute for more  than a year. Also upset that they were very wrong in their analysis some how, and had no right to say anything , since they do not know what they aare doing in the first place. 

2. upset that my family doctor told me that the cancer in my spine is going to hurt really , really bad, and way worse than the sciatica and spinal stenosis that I already had for 50 years.

3. upset thatoncology told me that I had 2-1/2 years ,  1-1/2 years ago (means i have a year) and that I have not been able to change that parameter so far.  I am very strong in my abilities to change my medical condition and have actually improved my situation on a few occasions. 

4. am very upset that no one has provided me any real support. Seems as if everyone has deserted me since I first became disabled in 1999, and even more since 2007 when i was so near to death from a totally failed heart, and cancer. 

5. am upsewt that a dcotor told me to not check for cancer earlier - it might have helped me .  I do recognize that had they told me to check  - my situation might actually be worse. 

Yes, I am dying. And I am not happy about that. Do not ask me if i am terminal, or how long I have to live!

I am anavid soul traveller and I have died before  - in 2008 at a party. Death was not a bad thing or place. It felt kind and loving and warm. Took me months to get over wanting to return there. 

posting this now before I screw it up again. 

  • Hi Sadcat As a terminal patient myself, i kinda understand your plight and im really sorry to hear that aside from the fact that youre not receiving an adequate support they also warned you that things could only get worse from there. Im not sure what will happen to me but im pretty sure that i'll be very upset if i where in your shoes. That said, i realized that the last thing i want on my final journey is harboring negative feelings like anger, hopelessness, regrets, and frustrations. I decided that even if i experience tremendous physical pain along the way and circumstances not going the way i want it, i will try very hard to have a final moment where im happy, satisfied, filled with love, and understanding and forgiveness my fellow men and women.. Cancer may take away my life but it will not take my aspiration, dignity, and my happy final conclusion to my journey. I'll pray and hope for your well being and your happiness.
  • Hi Sadcat,

    Have you tried unloading some of this onto the professionals who are supposed to be caring for you? This might both answer some of your questions and make them aware of their mistakes. You could do this by phone, in person or via email or letter.

    For example, ask the Cardioogist whether you weren't given this information - was it an oversight, did they think that HAD told you or was there a reason for deliberately withholding information? If there wasn't good reason this was both unethical and clinically dangerous! 

    I have a similar experience with Oncology, I am way past the original time I was given and they just say that I'm a statistical outlier and so they aren't able or willing to guess how long I now have. This is a good thing in a way, but we all would like some certainty and to be able to make plans! 

    Your family doctor probably thought you'd prefer to know the truth about what lies ahead, without imagining the stress that this knowledge would cause. The exact reverse of the situation with the Cardiologist. 

    I share your frustration with not being checked for cancer sooner - but we will never know whether the outcome would have been better, worse or the same. I try not to dwell on this as it is pointless worrying over what might have been. 

    I just tell people that I'm living with Stage 4 cancer and that just like them I have no idea of how long I have left to live. I mean some time today THEY could have a heart attack, be run over by a truck or be murdered by a pi55ed off cancer patient who is sick of being asked dumb questions! 

    Best wishes

    Dave

  • Joyfulofjourney what a beautiful and thought provoking response to the original  post. May your journey be as you wish . Thank you

  • Hi sadcat

     

    i notice you say you have died before, and it was a nice experience? Can you explain more? I'd love to know how my mum would have felt when she passed x

  • HI Marie

     

    I am sorry  - I do not want to write about how it was when I died. Every time I write about it  - -i feel the urge to return there for months.  It is just too strong a feeling I get from it. 

  • No worries sadcat sorry to ask you xx 

  • Marie

    I have re-considered your request. 

    I am going to draft a description special for you and others. 

    I feel that my experiences were significant. 

    May take a day, but will post it.

     

  • Here is  a re-account of what happened:

    Description of my death or near death experience

     

    It was March28, 2008. I was at a wedding rehearsal dinner. The night before I had been at the bachelor’s party out. I had had a lot of salty foods and was feeling sick, because I had a very badly damaged heart.  At the party I had a beer and a little bit of salty food.  Then I took some of my heart meds. Shouldn’t have taken the meds. I began to feel really bad almost immediately. I told my wife to get me out of there       ( I did not want to cause a problem) , but then I started to cough up stuff . I tried to leave . Got up  and tried to walk away , but only got as far as a big chair. I pretty much sagged down onto the chair . I almost immediately lost consciousness.

     

    As soon as I lost consciousness , I started seeing everything around me as being black. There was also a small round spot which was bright light.  So I moved myself toward that light.  I was not in my body any longer. It was not my body I was moving. It was me, my essence.  For a little while I continued to move toward the light.  I felt a tremenduous feeling of warmth and Love. I was getting near to that light, when I felt ice water on my body, on my neck and head back at the party.  That brought my essence back from the black place and into that room.  I felt myself pulled back into that room.  But, I did not return to my body , I had consciousness from a spot on the ceiling. I was able to hear and see what was happening.

     

    I heard my son , and brother in law  - -they has put ice cold water on my neck and head .  They are doctors. Then they put my body on the floor, after saying  - its time. I could no longer feel anything related to my body.  Then they called 911.  Let me be clear  - I was not hearing or seeing anything from my body.  I had a different consciousness, that was outside my body.  I did not have any consciousness from inside my body.

     

    When the EMT’s arrived, they approached the body on the floor.  Suddenly that body said, I don’t want to go with you .”  So the EMT’s backed up a little and looked around.  The body did not make any move to get up.  So the doctors said to the EMT’s  - - “He is out of it , just take him.”  So the EMT’s put that body onto the gurney and strapped it down .   Suddenly the body said, “ Let me up .”  So the EMT’s  backed up again .  But the body did not make any move to get up. So the doctors said, “Just take him.”   And so the EMT’s did.

     

    As soon as the EMT’s put the body into the ambulance, I was immediately pulled back into the body .  And, everything went dark  - -I could not see or hear anything.

     

    Later.

     

    At a much later time , I described all the speaking and actions that occurred in that room , to the doctors, and they were amazed that I knew anything from that time.

     

    The medical report from the EMT’s for that incident stated that I was in an altered state of consciousness.

  • Hi sadcat

     

    thanks for sharing with me, I have read lots of near death experiences and they all sound the same, which is reassuring for me. I very much Appreciate you sharing this with me. I often wonder where my mum is noe and if she's peaceful, I really hope she is x