My Dad is dying of GBM4

My story starts, like any family, 4 of us just getting through life with great parents, a very close knit family.

Then it all went pear shaped. My dad was away on business and we got a call saying he was in an Italian hospital as he had collapsed. We will later find out that he has gbm4 - a real shock given he was 61, fit as a fiddle, ran marathons, played squash 3 times a week and was a great businessman and a truly amazing father to me and my sister.

The diagnosed was last June 2015. My dad had no surgery due to location which was a disappointment but we pressed on with chemo, radio and a clinical trial. Tumour reduced by 40%, he was all good for 12 months actually weirdly enjoying his life as normal - working (he is a businessman), socialising and even exercising. We were almost getting complacent thinking that maybe Dad was one of the few who outlive the prognosis.

Then it all went downhill after a couple of seizures in June 2016, almost a year to the day he was diagnosed. 

Also, one aspect that really makes me upset is how his short term memory started to be affected - he was an incredibly bright guy, PhD's, knew everything, never wrote anything down. I remember I saw him visibly breakdown, first time I had ever seen my superman dad cry. Makes me so sad.

Anyway, I am thankful for the time we had from diagnosis and just pray for a miracle as he is still with us.

What is apparent is that as the man in the family, I have taken over everything - finances, tax return, looking after his house but all of this is so tough as I am married myself, have a job which is in the city and have my own home. But my mother and sister rely on me and sometimes I wonder how the hell I am going to continue when he leaves this world.

Anyway, that's why I am here.

  • Hi

    Im really sorry to hear everything thats been going on with your Dad and your family having to go through all of this. My Dad was diagnosed with advanced prostate cancer in August last year, he was just 55 years old. Like your Dad he was very high functioning, a surgeon, very active, constantly taking on new projects , he was the centre of our worlds really. And less than a year later he had passed away. I am just 26 and Im feeling the same pressure as you - the need to be strong for my family, take care of my younger brother whos just 18 and my Mum who's now living on her own. It feels like a mountain to take on, but it does get easier with time. Its been just 2 and a half months since my Dad passed away and it feels like a lifetime. 

    I think the truth is that there are no clear answers, no right or wrong actions in this situation. You can only do your best with the cards that life has dealt you, and dont take on too much responsibility or guilt. I was immensely worried about my brother, who started university just 2 weeks after my Dad passed away. Actually hes doing ok, enjoying his studies and making some good friends. People are much more resilient than we think! Try to look out for yourself too, as you too need a break and someone to rely on.

    If you ever want to chat directly please do send a message. Best of luck to you and your Dad.

    Take care,

    Nikki

  •   i think this will be the test of your life,   for all involved.  sounds like your doing your best. dont forget to look after yourself