My story starts, like any family, 4 of us just getting through life with great parents, a very close knit family.
Then it all went pear shaped. My dad was away on business and we got a call saying he was in an Italian hospital as he had collapsed. We will later find out that he has gbm4 - a real shock given he was 61, fit as a fiddle, ran marathons, played squash 3 times a week and was a great businessman and a truly amazing father to me and my sister.
The diagnosed was last June 2015. My dad had no surgery due to location which was a disappointment but we pressed on with chemo, radio and a clinical trial. Tumour reduced by 40%, he was all good for 12 months actually weirdly enjoying his life as normal - working (he is a businessman), socialising and even exercising. We were almost getting complacent thinking that maybe Dad was one of the few who outlive the prognosis.
Then it all went downhill after a couple of seizures in June 2016, almost a year to the day he was diagnosed.
Also, one aspect that really makes me upset is how his short term memory started to be affected - he was an incredibly bright guy, PhD's, knew everything, never wrote anything down. I remember I saw him visibly breakdown, first time I had ever seen my superman dad cry. Makes me so sad.
Anyway, I am thankful for the time we had from diagnosis and just pray for a miracle as he is still with us.
What is apparent is that as the man in the family, I have taken over everything - finances, tax return, looking after his house but all of this is so tough as I am married myself, have a job which is in the city and have my own home. But my mother and sister rely on me and sometimes I wonder how the hell I am going to continue when he leaves this world.
Anyway, that's why I am here.