hi,

On 2nd September 2016 at 21.38, My brother was rushed to hospital with a series of seizures the like of which I have never seen, over 30 one after the other. He was sedated to stop them and allow a ct scan. We, my other Brother and I waited and waited, until 01.30 the following morning. Then we were told there was a shadow on his brain. The next day he woke up and they moved him from critical care onto a medical investigation ward. On the following thursday we were told he would be sent home the next day with no diagnosis or care plan even though by then we were told he had 3 shadows on his brain. Then on the Monday he had 3 more seizures and a nasty rash which they thought was measles. They moved him again to a containment ward. 3 days later it tuened out to be a reaction to the anti seizure medication and also a urine infection. We waited again for liason with southampton neurological. eventually after 3 weeks of meeting later he was sent to southampton for a brain biopsy. When he came back to poole hospital we were told on wednesday 28th september it was a glioblatoma multiforme and untreatable. He probably he has about 8-12 weeks to live. Then the following thursday the same doctor wanted to send him home with no care package in place. Then on the following monday he had 3 more siezures, really bad ones. We have been going round in circles for nearly 7 weeks now and all social services wanted to know is if I could access his bank account so they could charge him for care, they said with a terminal diagnosis and many seizure he was too well to be in hopstital and they would be likely to charge us for the bed if he was there any longer. Now after hundreds of phone calls by myself and the ward nurses, we have been approved for fasttrack funding through the CHC. But it is anything but fast. We have been offered and accepted a place in a specialst palliative care home. But now the home cannot get an assessmant of needs done until tomorrow. My Brother is getting worse, slower, more paranoid, less able to process thoughts into words. I do not know how long he has. This is the most horrid disease ever!