Catch up

Hi everyone, 

Thought I'd say hello, it's been a little while. I'm back on the chemo, hence being wide awake at this hour. Still finding it very hard without my hubby and its the little things that stab at your heart. And I have good days and bad. It's the emptiness and loneliness that's hard. Most of our friends are couples and I feel like the 3rd wheel. 

I'm dreading Xmas this year, wish I could just go to sleep for a few days and miss it.

I decided not to pay for the avastin, although I'm glad to say that my 2 local hospitals now offer a top up option and my oncologist told me it was all down to me, which puts a smile on my face knowing that I might of helped others in the fight with this awful disease.

On a positive note I've had a decorator in, brightening up a couple of rooms.

I could go on and on but I'd be waffling.

  • Hi to tonim, 

    Nice to see your name and hear your update. How rewarding to know that your efforts re the drug availability has produced good results locally. I hope your present chemo treatment helps and it's good to be able to make those choices that best benefit your own illness. Having been a widow for nearly 22 months I am approaching the second Christmas but do understand and remember how the first one felt. My grandchildren helped me through it as we focused on them and I spent the two days with family as they did not want to see me on my own. 

     

    I also went down the redecoration route and it gave me some feeling of purpose. No easy but manageable.  Take good care and sending hugs, Jules  x

  • Hi Tonim, good to see your post. I was wondering about you and hoping you are doing reasonably okay. I know your life has been a struggle for some time now, but I did miss seeing your posts on here. I kind of smarted at your decision not to pay for the avastin because I know how pricey it is and it really irks me that these drug producers charge outrageous prices for possibly life saving drugs. We had a lawyer here who fought for a long time to have avastin covered for cancer patients while he was dealing with the disease himself, but was paying for his avastin. Unfortunately, he did die before a decision was made to pay for it in some cases. I did smile when I read that you have decorated some rooms in your home, and what seems like something we would take for granted at another time, sure means a lot when dealing with this terrible disease. The things we can't do often outweigh the things we can and it gives us a better appreciation for what we can do. I'm finding it that way myself.  

    I hope you will come back on from time to time just to stay in touch and let us know how you are. Dealing with this disease in and of itself is bad enough, but often we have other challenges in life that are not always apparent to others. You have a lot on your plate.

    Take care and sending you hugs.

    Lorraine