In limbo!

I don't really know what to say or where to start. To cut a long story short in January my mum was admitted to hospital with a suspected stroke. They then found a tumour in her brain. But without investigation they couldn't say it was cancerous or not. 

She had an op on 1st Feb to take a biopsy and as much of the tumour as possible. The op went well but the biopsy showed that mum had a grade 4 glioblastoma. Mum actually thanked the nurse who delivered the bad news. Mum said she didn't want to know anything.... no prognosis or anything. So me and 1 of my sisters who was there at that meeting couldn't react. I knew this wasn't good. I was given permission to speak to nurse away from mum and ask what I wanted. 

I was told without treatment mum had 3 months. 

But with brain tumours the prognosis goes from around the 3 months to a year.... with 5 in 100 people passing the 3 years. 

Mum decided on treatment. She had 6 weeks of radiotherapy along side chemotherapy tablets. That finished mid april. I've not been told how treatment worked...and I know mum won't ask. I know the treatment won't have cured her.... but was wondering if anyone has experienced anything similar and could offer some information on what the radiotherapy could have done... and how it effects prognosis. What to expect next etc. Thank you. X

  • Hi Hjsnoopz, 

    I'm sorry to hear about your mum's situation but I'm glad she decided to have treatment. It can be very frustrating not knowing what the treatment has done but I have found some information on our website that might help. Just click here to find out more. You can always talk to our nurses as well. They are specialist cancer nurses and will be more than happy to answer any questions you may have. You can call them for free on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope this helps.

    Wishing you and your mum all the best, 

    Steph, Cancer Chat Moderator

  • I'm a single mum my mum has weeks to live she is like my daughters mum she is every thing to me I just don't know how to cope this is a living hell

  • Hi hjsnoopz When I read yr story it sound like I was writing it and had to reply my mum has the same tumour it is at the front of her head which effect her personality and feelings . I got told straight away it was cancer but the way they talked about removing it I thought my mum was going to b ok how wrong I could b the information we got was little they told my mum things but then she would forget and when ever we asked to talk to a doctor they were never free made me very angry .its only when we got told the name of the tumour and it was stage 4 I looked it up on the Internet I had to brake the news my dad his face I'll never forget it but I still don't think his fully taken it in. My mum is home now but she has good days and bad days she's been told she has 12 months to live with treatment radiotherapy for 6 wks then chemo what happens after I have no idea when I asked they keep telling me not to get ahead of myself but I'm one of those people who needs to know to plan ahead . The feelings I have come in waves it's so odd I feel my self sucking in my feelings and trying not to cry in front of my dad as I no he will brake down and we need to b strong my friends think something is wrong with me as I don't cry when I talk about it to them but I do cry just not with them I can't handle peole asking about it all the time it's doesn't feel reall hope this helps hj stay strong
  • Hi Bobby. So sorry to hear you are going through the sane as me. Yes it's scary how many people seem to have this really! Life sucks sometimes. I find talking about it all with friends and family helps lots.... just not in front of mum. Mum keeps saying things like "I can't wait to get back to work" which is devastating. We are trying to just make happy memories with mum as much as possible. She has an appointment end of august. ... but just a routine blood test apparently (whatever that means) I like you need the info. It helps me feel like I have control...even when I don't. Do you have family around you? Thank you for writing to me. X
  • Hi. That must be so hard. How long has she been ill. It will be equally hard for your daughter. So sad.

    Anything I can help you with just message me. Huge hugs x

  • Thank you so much.

    I think with mums tumour being so unpredictable it's hard to find info to know what comes next. Drs can't say either. X

     

  • Hi Hjsnoopz and thanks for reply and yes have lots of friends and family around me.

    sometimes hard talking about it all to friends as they ask questions I don't have answers to and feel stupid.

    its really hard on my dad looking after my mum as he cant leave her on her own as some times her legs just give out on her and she's just not 100 percent with it bless . Is yr mum still ok on her own? Do u know where her tumour was front of head ??

    we are taking mum on Wednesday to have her masked fitted for the radiotherapy don't no how well that will go but will soon c .

    please let me how u and yr family are doing and take care xxx

  • Hi hjsnoopz Just wanted to c how yr mum was and how u and yr family are to. Thinking of u all X Bobby123
  • hi bobby123, im sorry to hear about your mom, i have been searching back on posts,   i just wanted to touch base, see how things are going. dads all started with a fit  at the moment all is going well..i just wanted to say hi.:)