Family aspects

Hi, 

First time poster on here, I was just wondering if I could seek some advice. 

Back in October last year my dad was disagniosed with Mesothelioma and as I was married in November, I found out about it in December as my parents kindly decided until after the big day to give me the full news. 

Since then, the last 4-6 months have been a (mainly downhill) rollercoaster. Immediately he was taken into hospital as he had quite a severe pleural effusion which was drained and it was filled with the talc like substance on his lung lining which seemed to really improve his breathing and walking for a short spell. 

He was offered chemo with no guarantee it would do anything as the tumour it seems is 8cm in length. He took the chemo and each 3 weeks, he has taken treat for 4 treatments as suggested which has now finished. Over the course of this, despite the odd good day, it seems the chemo hasn't done a great deal of good. When the treatments were ongoing, we could always have something to aim for, but I guess now it feels like that has gone and we are just kind of ....waiting..

He has dropped from a regular 12 stone something, to now 8.5 stone. He struggles to eat, concentrate, watch TV, read, walk, or even stand now. This from a man a year ago who was strong as an Ox, still not retired, golfed every week and was the life and soul of every party. It's a remarkable change in such a small period and I guess now, from my perspective, it's coming round to the realisation my dad isn't going to be here for much longer. 

My mum has dealt with it remarkably well, but I do sense she is starting to crack under the strain of the nurse role she has had to adopt alongside full time work, dealing with the legal case, grief and realising their retirment plans of travelling next year have now been dashed due to a job my dad took in his 20s not even knowing what Asbestos was. 

They live rural and with my working full time I can't constantly see them, but I have gone to every hospital appt I can and travelled late eve/early mornings for both their recent birthdays to make sure I was there, but I feel so damned helpless. There isn't advice I can offer to help my mum, my wife has to put up with my regular crying and emotional state of mind and it's just...so frustrating. 

Next step is another scan on Thursday, followed by those results the following Thursday. He's still focused on attending my brother's wedding in September as a goal to get to, but of course he needs the correct balance of medication, needs a way to put on some weight and be able to lift some of his weariness by then and I'm not sure how he will do this. The effort of going to the end of the garden path makes him need a lie down now, heaven knows how travelling to another country would work. 

 

  • Hi and welcome to the forum though of course sad to read why you are here.  My husband had an almost three year journey with Mesothelioma (though only  managed one chemo treatment due to bad side effects). I can relate to everything you write as to how frustrating it is to be unable to make it any easier (and I was living with him). Six months after diagnosis my husband was no longer able to work (was 60 at the time) and did not want to travel though he continued to be able to drive until just three weeks before he died in January 2015.  Like you say until the news hit he had rarely had to go to a doctors. Not sure whereabouts in the country your Dad lives but we were put in touch with HASAG (voluntary organisation based in the south of England) by his oncologist, who were a great help in completing all the legalities/paperwork which was a huge relief.  My husband could not have any surgery/draining and eating was a real issue for the last two years.  We were helped a good deal by having a reliable palliative care team/community nurses and our GP service and my husband was cared for by them at home (his choice) in the latter stages. 

    Please do ask any questions you want to as this forum was my 'mine of information' and support during the hardest of times and it helps to  have a good rant at times  Jules54