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My Dad is terminal

Angelab01
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Hello,

I feel really lost, a few weeks ago my Dad was rush to hospital, my sister found my Dad in a bit of a state- after he had an X-ray we were told that they had seen something concerning on the X-rays. After a week of being in hospital and being transfer to Hope hospital, my Dad was diagnosed with an inoperable, terminal brain tumour. (Glioblastoma multiform) he opted not to have and treatment as his neurosurgeon told him that any treatment would only give him a month of so extra. He was given at most 6 months to live, he's only 64 :(

 

I feel so devasted and can't stop crying. He's explained that he doesn't want to be ill for the last bit of time he has left, after a long chat with his surgeon and Drs, he decided that he'd rather live 'comfortable' for 6 months than in pain and unable to get out of bed to only live a month or so extra. His tumour is very aggressive and he's now back in hospital after having a huge seizure on Saturday :(

 

I know he's scared and sad but wants his dignity. I just want to support him and make him feel happy for whatever time he has left. His personality has changed but we've been told this is due to the tumour and also the trauma to the brain after his seizure. We have been advised by the doctors at Hope that he will not be resuscitated if he has another fit that causes him to go into a coma.

 

I really don't know how to cope :'-( it's just been the worst 3 weeks. I love him so much :( what will happen to him when he dies :( what will happen to his lovely soul :(

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    Hi Angela

    Your situation is almost the same as mine, my Dad was diagnosed with the same thing(glioblastoma) at the end of March, he had been displaying symptoms of forgetfulness that were getting worse and worse so we insisted on a scan as we thought it was the start of dementia.

    My Dad's is also inoperable, he is older than your Dad but has never really had a days illness in his whole life and was fit and healthy before this happened, treatment also is not an option in my Dads case which I find heartbreaking as its like we are just giving up and letting him die but I just don't think he is strong enough to be put through it.

    I am so sorry for you, I have been devestated since I found out too. I feel like I am in a nightmare I can't wake up from. It is hurting so much to see him fade away in such a short space of time. 

    I wish your family all the best and hope that one day they will find a cure for this awful disease that takes away our loved ones so ruthlessly. X

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    Hi. I'm so sorry to read this. My dad is 58 and has been given 4 months. He has cancer of the liver and lungs. Dad could have had more chemo but would have only given him a few more months, and like your dad he wants quality rather than quantity. 

    It really is heart breaking and so hard to comprehend.

    I feel exactly the same as you about what will happen to my beautiful dad when he passes. 

    Thinking of you and your family X 

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    Hi angela

    so sorry to hear about it. I lost my mum almost 3 months ago to a GBM  (glioblastoma multiforme) It's so very hard because you want to know what will happen, you need to have some control but you can't know anything- everyone's journey is different. I can tell you that my mum was unaware that she was coming to the end (although she was conscious right until 1 day before she died, often they don't tell you that and it can be a shock) and she had no pain, she just, as they say 'fell asleep.'

    Positivity kept my mum alive, i'm 100% sure. surround him with as much love and positivity as possible.

    What will happen to his lovely soul is that it will live on as a beautiful energy in the world.

    lots of love and strength, you're not alone.

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