My dad has Terminal Secondary Liver Cancer

So, Here goes,

Last year my Dad was diagnosed with Stage 3 Lung cancer. Luckily he was operated on pretty fast and also received CHemo and Radiotherpy. A few months ago we were told things were looking pretty good. After another scan we were told he had a slight shadow on his liver but once agian, we were told not to worry, maybe trhey were just being thoughtful.

In february we found out that he has secondary liver cancer and there is nothing that can be done. Devastated is an understatment. My mum and dad have been together since they were in their 20's and dad is only 63. Even though I'm 31, which is still young, i feel like my dad should be invincible.Ive served in war zones across the world but this is a different feeling of being anxious and scared.

Yesterday he said he has itchy skin and started having pains more often but just on and off at the moment. SO, to me its his liver starting to struggle to work properly.

The waiting around is killing me. The unkown is killing me. Thinking about going to my parents and not having my dad to watch rugby and eat nibbles with is killing me.

I bloody hate this. I really don't know what to do to help my mum, dad and the rest of the family.

I'm sat in work writing this with my eyes filling up :|:|:|

I don't really know why I'm writing this..Maybe for replies of support or other people going through the same thing.

 

WIll

 

  • Hello Will,

    I'm sorry to hear about your father's stage. I too have terminal cancer it's in my breast, bones and liver I understand how hard it must be to think about losing someone you love so much. I have two children one is 3 and the other one is going to turn 1 in June I'm devastated for them to think I'm not going to be around for them at some point. The main thing you can do is spend as much time with your dad and keep his spirts up, tell him how much you love and appreciate him and your always going to be at his side. Having this horrible illness we need others there to keep us going and to take our thoughts away. Still carry on doing all the fun things and treasure them. 

    When I found out I started doing a lot of research and I've changed my diet round and cut out a lot of things that makes cancer grow and after being told their is a high chance that the tablets I was going on weren't going to work for me my tumors have been shrinking and shown more shrinkage in my liver I do believe by changing my life style I'm helping fight this. If you want me to fill you in on my diet changes send me a message you never know it might help your dad to. 

    Stay strong 

    Kirsty X 

     

  • Bloody hell Kirsty i can't imagine what you are you family are going through. I wish we could take all this *** away and make everyone happy.

    What diet changes have you done?

    My dad has changed his loads. He juices everyday. He has cut out sugar as much as he can  although we find him sneaking chocolate bars and other tasty bites.

    We have also been trying cannabis oil but he i just usualy out of it and doesnt really do much. I think he'd rather have quality than quantity. I think not having a time scale is the worst. I suppose everyone is scared of the unknown.

    I also have a little boy who will not have an amazing grandad to grow up with and that hurts i suppose. My problems are minscule compared to yours. I wish all the best to you, i really do.

     

    WIll x

  • Hi Will,

     

    Really sorry to hear about your dad,

    Lung cancer is a real git - even when found at stage 3 only about 1 in 4 make it to 5 years after diagnosis so the way that your father's condition has panned out is pretty common - obviously this wouldn't have been information that they'd have volunteered at the time. If you want to know this sort of thing you kind of have to look them in the eye and ask them straight out - you can't untell someone what their chances are so they tend to err on the side of caution.

    When you say they've said there is nothing more to be done do you mean that they've said that there is no treatment like chemo that may slow things down or simply that this will get him in the end?

    People often use terminal untreatable and incurable in the same way but they can be quite different - for example my wife's condition was always incurable but after two and a half years of chemo that stopped working and she was untreatble and in her caser terminal (less than 6 months expected lifespan).

    If they have no treatment of any benefit and he's still relatively fit and if he's not had recent chemo he might be a suitable candidate for clinical trials if that's an avenue he wants to consider - you can find the active trials here:

    www.cancerresearchuk.org/.../clinical-trials-search

    If so try to talk to his consultant about a referal - I would caution though that when my wife and I went to talk to the trials team at the Royal Marsden they were pretty straight and said that only about 10% of people get any real benefit from trials but if you're out of options 10% can start sounding pretty good.

    In any case you need to reasses your thinking - its so tempting to start the grieving early and start thinking past to a time when you've lost your nearest and dearest but you've still time left - concentrate on spending that as wisely as you can - try to find some things to do to have some fun with him - it'll take his mind off of it and yours too and those hours minutes even when you're not thinking of it are like gold. They will also be some of your most precious memories in times to come.

    You also want to talk to the palliative care team at the hospital about making sure his pain is well managed - is there a hospice nearby where he could go if that becomes necessary stuff like that - your job is going to be making his passing as smooth and as painless as possible.

    Possibly Mcmillan too call them today and explain about his situationa nd see what they can do to help

    www.macmillan.org.uk/.../Palliativeandendoflifecare.aspx 

    Then you can worry about grieving 

     

  •  

    Hi Will, I'm really sorry to see your dad's cancer has spread to his liver. Although his diagnosis may be terminal long term they may well be able to offer chemo for the time being to slow the growth down. The consultant should be able to tell you what the liver function is currently like. The itching skin is probably related but I'm not sure if to the liver function or not. I think as for timescales, I think you're best off not knowing, having that hanging over you is awful. Living each day thinking I'm not going to have a dad in so many weeks or months is very hard. We're all dying at some point in our life, some earlier than others unfortunately. Try and focus on your dad being here and enjoy spending time with him. How old is your little boy? There's nothing about this journey that is easy. All you can do is be yourself and love and support each other the best way you can. I lost my dad 5 months ago to lung cancer that had spread to his liver. A month before his 65th birthday. The last 5 months have been truly hard and I don't get many minutes in a day when he's not on my mind. It hit my daughter who was 3 at the time very hard where my 15 month old didn't feel the pain. Coming on here each day reminds me that I was blessed with a lot more years than others have been and for that I'm grateful. There's no easy way to loose a parent and for a parent to know the end is near must be truly awful to go through. I wish you and your family well on your journey. Take care x

     

  • Hi Kirsty, life is so cruel at times. I cannot begin to imagine how hard it is knowing you are leaving your precious children behind. I'm glad to see your tumours are shrinking. Have you looking into breast milk at all? If I'd of still been breastfeeding when we found out my dad was unwell I think I'd of force fed him some. Obviously expressed... Lol. The research I found looked promising and if in the position I'm sure most things are worth trying. I hope your tumours continue to shrink and you kick its butt. xxx

  • Sorry to hear that. I am 39 and my dad 65 was diagnosed 6 month ago with 10 cm liver primary liver cancer. It was a routin check ...He didn't had any simptomes. He was like a bull 100 kg and stronger then me.In only 6 months lost 35 kg.He is depressed 

    It's just painfull to wach him. I am consultant anaesthetist with a lot of knowledge and friends.But this doesn't help. I feel frustrated and angry.I bought him a Labrador ho changed his mental state.

    Just be strong and offer him love.

     

  • Hi Will 84 so sorry for what is happening to your a Dad. It is devastating and hard to live with but the treatments nowadays for palliative care are fab. My dad has stage 4 breast cancer in his bones and myeloma (bone marrow cancer) and has had 5 more lovely years. Sadly he is at end of life now but have a family who love him so support your dad best you can and get him to his Gp for his itching and pain relief as there is no need for your dad to be in pain.

    it is devastating Will but talk to your siblings how you feel nd any close family have a good cry and shout or scream! I’m not sleeping well at the moment and suffer with anxiety anyway but weirdly I don’t feel anxious 

    much love 

    mitzi 

  • Hello my name is lisa and my mother 7 weeks ago we got the bad news she has 3 to 6 week to live.  she went to hospital with her lungs. They told us it was pneumonia and now she be Ok. 1 weeek after spending 2 weeks in hospital, she had brest cancer 8 years ago and she got cleared, 8 years it gone she was. Then when she first got sick we where told it was pneumonia. 1 week alter she keep getting sick and not able to breath while getting sick.so she was talking back into hospital they sent her home telling us it talks a while for pneumonia to go. 2 days she felt worse so we tuck her back into hospital to then be told it is cancer they fould it in her blood a week later she got a biopsy done and it came out that my mother had 4th stage cancer where it came from liver and attached through the lungs she was given 3 to 6 weeks to live many weeks but not many months that's what we were told now it's 7 weeks and she is ok doing ok with chemo treatment but she doesn't speak much or can talk much getting sick all the time and to watch your stong mother going true that kills us evey day. She is 66 years of age looked after two families and her friends 2 girls that passed away when they where very young so my mothe looked after the 2 girls then 6 kids of her own and 4 of my sisters kids. They are all adults now and she only went on her frist hollday this summer with my Daddy, she came back never on a plan her and my fathers 1st time away frim Ireland they saud where going to do that evey year my mother siad to my daddy but they never can go away again because she fell very sick when sge got home not knowing she had 4th stage cancer notting only they have her on treetment morphine and relaxing tablets and move meadachion. It breaks my heart we only just 6 monthes ago and last Christmas her two sisters passed away from the same cancer and my mothers 2 brothers all in 2 years  God i pray she live 5 years we are all praying for that so i understad what your family is going true the pain is never endding because your not ready to let go of out family members. I keep positive because it is all we have now is god and staying positive that is what the doctors said to us. If any mother desrves a places in heaven i know when it is my mam's time she be with her family and mam and her dad. Sge is very kind loved by eveyone so its hard she well git her places in heaven when its her time. Keep stong anyone going true this i live alone so make sure you have a lot of friends around you to help talk things of your mind even if it is only for 30 seconds. Spend evey day if u can with them because you need to help them fight this cancer my heart breaks for anyone going true having cancer  and there familys also. Peaces and love to eveyone ️ ️ ️

  • Hi my dad also has liver cancer 11cm mass he was told in January this year that there was nothing they can do he was given 3 to 6 months its awful to see him like this 

  • Hello my dad has got advanced cancer stage 4 liver and bowel and has been told 4-12 months. He has been waitng to hear about a clincial trial but still no news. You feel helpless and frightened x