No more treatment available for my wife's appendix cancer

We just found out today that the bowel symptoms my wife (who is 55) has had for the last 3 weeks are due to the cancer infiltrating the bowel, advanced quickly after 6 cycles of chemo finished in November - if she didn't have the bowel problems they could try irinotecan - but she is not fit enough.

So now starting symptom control - she has had gasric emptying problems so been struggling to keep hydrated and hardly eaten anything for 2 weeks.

I think she was expecting the news - she was really scared last night before the appointment with the oncologist, but was much less shocked than me and has sort of accepted it and is more concerned about the effect on me and our daughters (17 and 19yrs). she wants to leave making the news clear to them until after Christmas but we have told them that the bowel symptoms are probably the cancer and docs etc will be trying to control and improve her bowel symptoms.

I feel a bit hollow at the moment and know I will have to support her and the girls until the end.

It all seems so unfair - 7 months ago she was perfectly healthy and thinking about the things we might do when the girls leave home and we think about retiring etc - now it is just wondering how long she has before she dies! Even 3 weeks ago after a clear CT scan we were making a few plans.

  • Hello, i am so sorry that your family is going through this terrible time.

    The cancer has spread very fast and invaded the bowel, is there any op that can be performed?

    I know that you must be very scared and unsure of what will happen next.

    Is your wife being offered to have a bag fitted?

    I wish that things were different and this was not happening but we can only try and be strong and keep fighting..... love to you all, Deb.xxx

  • Thanks for the reply.

    The cancer has spread diffusely in the peritoneum and appears to be affecting the nerves controlling the bowel - so a stoma isn't really an option unless the gut regains some function and surgery isn't an option either.

    She seems a bit better today as the s/c steroids seem to be helping. As you say we just have to keep going!

  • Hi Luke

    Sorry, I don't have any words of wisdom, but just wanted to say that your post really touched me and that I'm thinking about you and your family.

    Like you say, all you can do is take it a day at a time, try and grab hold of the better bits, and cope with the worst as best you can.

    Always remember there are people out here in cyber space reading about you, feeling for you and hopefully responding to you.

    Take Care

    (((Hugs)))

    Chezzy x

  • Hi Luke, I am so so sorry to hear your news. It sometimes feels like you receive blow after blow but you MUST remain positive, it's the only way! My dad died 5 months ago from stomach cancer, aged 54 and he died fighting it with all his might. Who knows how much sooner he could have dies if he hadn't pushed on? I am sending all the love in the world to your wife and also your daughters, I know very well how they must be feeling. With Dad we tried fruit

    Smoothies and vegetable shakes every day? Ok he was a pessimistic sod at first, but whether or not it will eradicate the cancer isn't the point, sometimes it can just help state of mind to keep control of some things in a positive way? You sound like a brill dad and husband, my thoughts are very much with you xx

  • Thanks for all the thoughts and best wishes.

    Unfortunately Helen has been only able to drink water and a one little Actimel drink each day for the last few days - she would love to be able to eat/drink something nice - although she had some sips of tea today which helped.

    We also wrapped a lots of wee presents together for the girls Santa sack (yes they are too old really!) and a couple of Helen's friends popped in for a chat - so it was quite a nice day today.

    We seem to be lucky as everybody health service wise has been great - although we would love to have not needed them!

  • helen has just started on  metoclopramide syringe driver - hopefully help with the symptoms a bit more. I had a better sleep last night, but she had a crap one so I feel a bit guilty!

  • hi luke, my wife died from a huge sacoma in the womb, 5 weeks ago today, she was perfectly well in september, she also went on driver, day before she died in hospital, unfortunataley she had a massive blood clot on the friday morning by yhe time i got ot hospital she had passed away, i really do sympathise with your situation and will pray for your wife, i would give anything to have ha d 1 more day with her as we only really found out the day before she died that it was terminal, love to you pete

  • Pete

    Thanks for that - Helen has been 'terminal' for a week or so - changed the syringe driver last night to hyoscine and she feels much better - sleeping loads today.

    Sorry for your loss - how are you coping?

    I am wondering what life will be like without Helen - been together for 27 years!

    Luke

  • helo luke. i was with kath for 37 years, it isnt easy at all i wont pretend it is, but this forum does help where people in similar circumstances can talk to each other, it helps believe me, any way thinking of you both today pete

  • Thanks Pete

    Have the best Christmas!

    Helen has not been too bad the last couple of days but not great this morning. Hopefully she will rally a bit later when we have Xmas dinner and her sister and Mum and Dad are here - she was desperate not to 'ruin' Christmas for us as she feels guilty about all the things we have missed over the last few months!

    Luke