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Process and pain of dying with esophagus cancer?

Katie8
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Hi guys my name is Katie and I'm 14 years old. My grandad has terminal esophagus cancer, aged 56. I was just wondering if anybody on here could tell me if it's a very painful death and the process of dying with it. Feel free too comment with any stories from family members ect.

Thanks.

  • Offline in reply to jkr0563

    Hi of course I dont mind you replying to this post.

    With regards to treatment i've just had my 4th round of 12 (every 2 weeks). They also pump som steriods through as well. After treatment started I could swallow easier nothing too large and I cant eat with any speed and everything needs to be chewed up pretty small, anyhow that effect seems to be reducing and im gradually moving back to soups etc just like I was before treatment. I find the cocodomol seems to help with the eating and helps my body relax a little cause I have a massive amount of trapped wind that my body seems to create

    I have to have two more rounds of chemo before I have any scans to see progress (fingers crossed).

    One of the things that annoys me that any of the data i can find is useless to me due to the lack of numbers of cases in my age bracket which largely means most of the data related info out this is completely not applicable to me which I find frustating.

    Anyhow I hope your scans bring you some good news. Feel free to comment etc anytime you need a chat about stuff.

    Best of luck

  • Offline in reply to xirax

    Hi just catching up with and how are you fairing. Myself I seem to have taken a step backwards, I’ve been managing to eat a little more normally the last month. Nothing massive but small portions of normal food, however this weekend I’ve really struggled to digest anything even cheese triangles. Had a scan about 2 weeks ago after my 4th chemo treatment and got a call of my specialist yesterday. Unfortunately my tumour has gone a little bigger and there are more lymp nodes infected. Still none of my other organs which is good news, so I’m now going to have a stent fitted on Monday with the hope I will be able to eat more a day or two later which is great news as I get married on the Thursday. 

    Then my specialist has said we will have a chat about a different form of chemo. They did say to me before I started any chemo treatment that there were other forms to try if the first lot didn’t work so that’s where I’m up to now. 

    Hope your progressing better than me 

  • Offline in reply to jkr0563

    Hey, sorry to hear about the growth that really sucks. I myself have had trouble eating recently as well but I have to wait till after my next round before I have a scan,

    Congrats on the wedding by the way. I hope the stent helps out, I am considering one myself but im not sure a stent will help to much as most of my issues seem to come when the food finally gets to my stomach (so much wind being generated etc).

    Let me know what other forms they suggest as I maybe in the same position soon and would be good to have an idea of the options beforehand

    Good luck with everything andd hope the wedding went off without a hitch! Stay strong!!!

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