So lost - husband diagnosed with stage 4 cancer at end of October. I don't know how much time we have left and I'm struggling with everything

My husband was told 28th October 2025 he has stage 4 cancer in the junction of his throat/stomach, it has spread to the liver, so thing like a layer of clingfilm over the bowl and lymph nodes, he was fitted with a stent in hospital to help him eat/drink, over the last few days (this includes visits from his macmillan team) he has had pain in his back and neck …they said it might be the stent, they have increased his morphine patch to 2 …but how do they know it’s the stent could it have spread? ….i have gone back to work 3 days a week 4 hours a day 7am-11am but I’m terrified of us being close to the end and me not being there ….we have an appointment this afternoon at hospital…..I don’t know what to expect or how long we have together…we had plans for making memories when he came out if the hospital but he hasn’t left the house since and is too weak …we was 13st 4 at the end of August he’s 9st 9 as of last week, another worry is he doesn’t have a private pension or life insurance…we are getting PIP (something we could have been getting for the last 5 years as he also has dermatomyositis when you’re immune system attacks the body he lost a lot of muscle mass so we used our saving to alter the bathroom over bath shower to a cubicle, garage up and over door he had problems with them both and a back garden only small but he couldn’t maintain it so we spent money on making his life easier but no one told us and we both work so we never qualify for anything) 

im struggling with everything, my husband, what’s next with his cancer, how long do we have and can I actually afford a funeral for him when the time comes …..on top of a pain and sadness that won’t go away a heart that breaking and tears that don’t stop 

any help is desperately needed x

  • Hello Tookins

    Im glad you reached out it is very hard what is happening to your husband and seeing him change before your eyes. i too have been where you are 

    I think furst things first mske a list and deal with one thing at a time 

    Once you have had hubby's appointment you will have sn update on how he is from the medical sise 

    Talk to your palliative team and ask directly what you want to know 

    Re finances contact Macmillan support services they helped us sort out our finances.now when you need it are you getting carers allowance for example. And you can ask about what help you may get towards a funeral if you do need it 

    • Mostly ask about end off life care in your area and take all the hrlp you can get so your time together is as easy as possible.

    I know this is hard to be going thru 

    Sending wife to wife hugs 

    With kindest thoughts to you both RB