Some assistance please

Hello, My name is Neil. I was diagnosed with eosphageal cancer in May 2022 and given a high percentage of death within two years.

I then had Radiotherapy, Chemotherapy and latterly Immunotherapy. After three years of treatment I'm still here.

Last week at a regular meeting with my consultant I was given the results of my latest scan..He told me the cancer had now spread and was now terminal.

If I have no further treatment I was told I could expect to live for about another six months. With further treatment 12 to 18 months.

I was wondering if anyone could give me some practical examples of how they dealt and coped with a terminal prognosis. I also would like to know how they informed their family. Thanks.

  • Hi Neil

    Its good to welcome another survivor to the forum. Terminal is a brutal word to tell someone. My oncologist used the term incurable with good chance of remission which gives some hope. Given that you're still here against the odds you may live a lot longer than the prognosis given to you. I dont think there are any tips for dealing with cancer that you have not already learned. Take one day at a time, enjoy life, do what you can do and accept the limitations on what you cant do. Spend as much time as you can with friends and family. Accept help when it is offered and seek help when it is needed especially for your mental health. Get practical things done like your will, power of attorney, funeral arrangements sort out your finances. As for telling your family you know them best there is no easy way. I told my family that the cancer was metastatic and incurable but that treatment was keeping it stable without giving a time frame. 

    Ed

  • Thank you for that advice Ed I'm sorry to hear about your similar situation .I will arrange to speak with my family over the coming days. I won't at this point mention the ticking clock time scale I mentioned.

    At the moment I seem to be switching between acceptance and a form of denial.  I find that a bit odd.

    I'll also begin sorting out the practical things you. referred to. 

  • Thanks Ed for your response and advice. I'm sorry to hear your situation is similar to mine.

    Over the coming days, I will arrange to update my family  with regards to the latest developments.I won't mention the the ticking timescales I referred to.

    The practice measures you mentioned are sensible and I'll push on with those.

    I find myself at the moment switching between acceptance and denial of my most recent prognosis. Very odd considering my previous history.

    Anyway thanks again.