Long story short I was diagnosed with aml leukaemia in Dec 23 2 rounds of chemo , straight for a stem cell transplant my brother was a 10/10 match (may24) fast forward to Jan 25 n I’ve relapsed was told I had 2weeks to live , so you can imagine it hit me hard I’m 45 no partner have 2 children in their 20’s still living at home I planned my funeral sorted out my affairs then was dangled a clinical trial in front of me , was supposed to start feb 25 but didn’t with lots of hospital stays and transfusions I’m still here n started the trial in may so far it’s not working I’m literally at hospital everyday for something, I’m finding it hard to make it threw the days my kids are in denial I feel so alone and I know I’m fighting to spend more time with them and I don’t want to die but it’s getting so so hard , the trial isn’t a cure but could prolong things a little , I m at the point where I can’t really go out other than to appointments because I’m neutraphinic I want sum sort of quality of life am I asking for to much ? My brother was there for me at beginning now I hardly see him cuz he can’t handle that I’m dying . I feel so lonely and abandoned.
