Cancer prognosis now terminal

Hello, My name is Neil. I was diagnosed with eosphageal cancer in May 2022 and given a high percentage of death within two years.

I then had Radiotherapy, Chemotherapy and latterly Immunotherapy. After three years of treatment I'm still here.

Last week at a regular meeting with my consultant I was given the results of my latest scan..He told me the cancer had now spread and was now terminal.

If I have no further treatment I was told I could expect to live for about another six months. With further treatment 12 to 18 months.

I was wondering if anyone could give me some practical examples of how they dealt and coped with a terminal prognosis. I also would like to know how they informed their family. Thanks.

  • Hello Neil,

                      its not a post that someone wants to write or read.The only thing l would say is that you need to get your head around this news and reconcile it with yourself before you pass it on to your family ,l wish you well in doing so,

    David

  • Thank you David.,

    Even though I have been given this news, I feel extremely well. I'm finding it difficult to reconcile that with a terminal diagnosis

    l have told my sister now but no one else. I realise the effect this will have on my elderly parents and son. I'm also aware of the strain I've placed on my sister

     She will be accompanying me to a medical procedure in a few days time.

    I'll continue I think, to play it by ear, until I can no longer conceal the truth.

    Best regards

    Neil

  • Thank you David. I'm finding it a bit difficult at the moment to reconcile a now terminal diagnosis when I feel extremely well.

    I know I need to accept.my circumstances as they now are.

    I've had today to tell my sister, as she will need to be with me when I have a medical procedure next week.

    I'll refrain from including anyone else until need to.

    Best regards

    Neil

  • Hi Neil

    Everyone deals with their prognosis differently there is no right or wrong way. When I was originally diagnosed with cancer I told nobody I went to all the clinics scans tests on my own and it was not until I was due surgery and a 4 day stay in hospital that I told my wife. I wanted to protect them from bad news. My wife was really upset that I did not confide in her. Since then I am very open about my treatment. The cancer is now incurable but treatable. All my family and friends know and they are quite accepting and supportive. Your loved ones are far more resilient than you think.

    If the treatment is not too onerous take the extended life option.

    Tell all your family now and dont bottle it up. Show them your hospital correspondence to keep them updated. All the best for your future treatment.

    Ed

  • Thanks Ed. Your advice is very welcome. I have had to tell my sister of the latest developments..

    I'm due to have a Brondscopy procedure- tomorrow and then a further appointment with my consultant on Wednesday.the 25th of June.

    I will need some support after this Brondscopy and overnight when I return home.

    This won't change much treatment wise but it will help with what comes next.

    When I have a clearer picture I'll speak with my parents and son.

    Once again thanks for getting in touch.

    Regards

    Neil