Feeling suffocated (wondered if anyone can relate)

Hi all, I wondered if anyone could relate to this situation or is in a similar boat? 

So my Mum is at the end of life with cancer and is now spending those last days/weeks in a hospice. She's already been in there for 5 weeks but the signs are all there, we're nearing the end :( . I'm incredibly close to my beautiful Mum. She's too young and it seems so unfair, she's only just turned 57 and my heart hurts so badly for her. 

Basically we didn't think she'd live this long. She's well outlived the prognosis she was given. We brought Christmas forward as we didn't think she'd see it. And ever since that last chemo treatment last year in November when it had stopped working things have slowly gotten really intense with family. It's so hard to explain especially when I'm conscious of not making this super long but because we've lived on borrowed time family have been more and more involved (understandably). My Mum was always the glue of the family bringing us all together and now these past months everyone's gravitated towards me and I've at times found it extremely overwhelming. I've voiced this many a time and I do at times suffer with my mental health so it's all been added stress. 

Fast forward to now. I've felt like my experience of Mum being towards the end has been hindered by the stress of family. I was constantly getting texts from everyone asking how she is, just felt like I was bombarded on the constant and couldn't be present with Mum. I'd be going home and the texts were still going and I just couldn't switch off. They'd be texting Mum all the time and if she didn't answer they'd message me. Emotionally I'm going through a lot and it's taken it's toll. I created a family group chat to make it easier but in the beginning I'd still get messages outside of it. There's so much to this situation but I'd be typing way too much. I just feel saddened that this is the end. I didn't much get that time to cuddle mum and watch all her favourite movies (we managed a couple) because it's been like a revolving door of visitors. I get that everyone feels entitled to that because they're family but I'm her daughter, the closest person. We've been inseparable all my life. We're best friends and no one on this earth gets me like she does and now she's not at all got the energy or with it enough to watch her fave films or just be able to hold a conversation. I think my family don't get it at all, feathers have been ruffled since I spoke up about my feelings. From the offset it should've been stricter instead of people just coming and going as they please because now it's much later in the day and I can't do those things that me and Mum always said we would near the end. I've just genuinely felt so suffocated by family. They can't understand my point of view. Some of them are my mum's age and still have their mum. I'm hurting so much. I feel like when mum passes I can't wait to push these people away and I'm shocked at how I feel but I'm angry that the end has just felt so hindered by it all. I hope I'm making sense. I'm not a selfish person. I'm not trying to keep Mum all to myself, I just wish more consideration could've been given to the mother/daughter relationship. I'm not sure I've explained this well, my head's all over the place. 

  • Hi StrawberryBear,

    A very warm welcome to our forum. 

    I am so sorry to hear about the situation that you find yourself in. Can I ask when your mum was first diagnosed with cancer and what type she has? I can relate completely to how you are feeling. Do you have any siblings who could take over the responsibility of dealing with the phone calls? Visiting your mum and tending to her needs is more than enough for you to attend to. If you could give a regular update to a designated relative and they could then relay this to everyone, this would take a lot of pressure away from you. 

    Can you limit the number of visitors to the hospice? Your mum must find it very taxing, not to say exhausting, to have so many visitors throughout the day. It is quite in order to tell her friends and relatives that she is no longer fit to have visitors. You can make a special concession for people that she might still want to see.

    Please keep in touch and let us know how you are getting on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, thank you for your kind reply :)

    In terms of your advice, I'm very grateful but it is too late in the day at this stage. I've done everything I can in terms of giving everyone the phone number to get in direct contact with hospice for updates. Things I reiterated to them that they never took on previously and would still just keep on with the messaging me and Mum. Since I've had a bit of a meltdown since reaching boiling point all is pretty quiet on the text front for both me and my Mum. They've started ringing the ward or updating each other rather than constantly coming to me. It shouldn't have taken me to feel so overwhelmed by them for it to get to that stage. I kept saying 'mum's not upto using her phone' but they'd always respond with 'oh we don't expect a reply' but of course Mum felt under pressure to reply but now she's at the point now her phone isn't an option, she doesn't have the energy for anything. 

    In terms of actual visits. Sadly I just think it's too late in the day to change things up :( I just accept it for what it is and am trying to go now when she doesn't have visitors because that 1 on 1 time is important to me. When we're actually in that active dying stage which I think is close, I will be staying over with her. Because she's my mum I sit with her from early afternoon until around 8pm and let's say Mum has 4 visitors that day, people don't realise how exhausting that is for me to make small talk with everyone of them every day. Of course this isn't about me, it's about Mum but she's voiced many times that she's tired of visitors but then when those visitors has turned up she says she doesn't mind so I'm here wanting to do what's best by Mum but then I look an idiot telling everyone that she's getting tired with the visiting for her to say she doesn't mind when they're there in front of her. 

    The whole thing has just burnt me out. People don't realise the pressure I'm under. No amount explaining made them see my point of view, they seem to think I don't want her to see people. Absolutely not the case, that wouldn't be right. I just wish there would have been better boundaries from the offset but this whole thing doesn't come with a handbook :(

    Oh and she has stage 4 triple negative breast cancer. It's her 3rd time with cancer. This most recent occurrence came back around 2.5 years ago so she's far outlived her prognosis. She's always been such a fighter x