Mechanical bowel obstruction/ileus

Hi, my partner is 42 and was diagnosed with stage 4 terminal bowel cancer 1 year ago. He’s had multiple surgeries and chemotherapy. He had surgery a month ago due to a bowel obstruction and his bowel hasn’t recovered since. It’s a mechanical obstruction and he has only been able to manage clear fluids. We are under the care of the hospice who are providing care with pain relief and symptom management among other things. They brought up the topic of end of life discussions today and things we may want to think about dealing with at some point and building a plan of what we do and don’t want medically should an emergency occur. We are seeing his oncologist Friday so will have a clearer idea. It seems that he could go either way, recover with his bowel and build up his strength and wait to see what happens with the cancer, or the bowel obstruction will get worse and then I don’t think there are any available options for him surgically etc. He is a bit constipated at the moment but still able to pass stools and wind. However as soon as he eats anything more than fluids, he becomes uncomfortable. 

My question is, if his bowel does not improve, will he die from this? Has anyone else had this issue and that was the cause of death? If so how long did it take to get to that point? 

Thanks

  • Hello Sunnybun,

                               Its a horrid place you find yourselves in and l think the only person that can answer your questions with anything approaching knowledge would be your medical team.

    l can very much sympathise with your predicament having had a stage 4 diagnosis with chemo/radio and multiple surgeries. Thankfully mine was not terminal but l have been left with a compromised bowel that has now blocked some six times over the past 4 years. Although these have to date resolved themselves l live with the fact that one day this may not be the case. The latest episode saw the treating consultant that it would need a hero to attempt to operate upon myself and would only likely take place in a life or death scenario, Meanwhile l see the circumference of my stools getting smaller.

    Your position sound much more serious and precarious, and as you point out it could go either way. The thing l would say is that the bowel absolutely hates being touched and leaves consequences behind from doing so. My experience has been that any notion of rapid recovery was wishful thinking, its a long slow climb back towards the old you.

    Reading that your husbands last surgery was only a month ago seems such  a short time given that it sounds from your post he has become very depleted from the cycle of treatments,  which l feel would very much place a cloud over being able to make a very clear judgement over his direction of travel. However this said l well remember how long a day ,let alone a week can seem when you find yourself in the midst of  a terrible conflict 

    l wish l could answer all your questions beyond doubt but l am afraid that appears to be a very big ask for anything approaching certainty, all l can offer is my best hopes for a positive outcome or at least one that you can come to terms with.

    l have agonised and thought long and hard to reply to what is a difficult post to respond to, and indeed how to, hence the time lag, but l wanted you know you are not completely alone in this, that there are others out here thinking of the both of you, with some understanding of the pain you are going through                                                                                                                                                                                                                                                                                                                                                                                                     

    l hope this post helps in some small way,

    David