Dad with Prostate Cancer. Feeling guilty

My dad was diagnosed with advanced prostate cancer two months ago.  He is 84 but otherwise healthy.  He thought he had sciatica so diagnosis was a shock.  He was given hormone therapy injections and tablets and within two weeks was a shadow of himself.  Exhausted and unable to move about properly.  He was admitted for emergency radiotherapy after falling at home and spent two weeks in hospital.  He was discharged without a care plan after refusing help but was clearly not able to look after himself at home.  I am his only family and live 50 miles away but I stayed with him for a few days hoping to get help from social services.  Dad was in bed most of the time and mostly asleep.  He was unable to take medication himself or organise food and drink or use the phone.  He developed.a worsening cough which was a worry so I called the hospital helpline for advice.  They said to bring him back to the hospital and sent transport.  It turned out he had aspiration pneumonia caused by swallowing issues.  He is on iv antibiotics and has been nil by mouth for over a week.  In the last few days he has become delirious and they are now saying he is unlikely to recover from the pneumo of as he is too weak and is not able to eat proper,y or use a feeding tube.  I feel like he has got worse because of going into hospital. And it is my fault for phoning the helpline.  I could have helped him at home more or called his gp for a home visit.  I keep thinking he would have got better this way and not deve.oped the delirium.  I thought I was doing the right thing and didn't really fully understand what was happening.  Has anyone experienced anything similar?

  • Please, please do not blame yourself, you are not at fault!  You say that you should have called the gp out, they would have taken one look at your dad and got him admitted to hospital too.  Unfortunately when our loved ones deteriorate to the point of not being able to eat, drink or orally take medication, there is very little that untrained carers like family can do to make them better.

    Your dad is in the best place, the hospital can ensure that his pain is kept under control.  Its very hard when our loved ones develop a chest infection on top of the cancer, because it can hasten things along.

    My mum was in a similar situation, diagnosed with widespread secondary cancer in hospital, they got her on her feet and after lots of badgering from me, arranged a care package so that she could go home (which was what her and my dad wanted).  Within a week of her being home she had a very bad chest infection, she was in horrific pain from the cancer in her bones, the carers kept cancelling on us and not turning up, the district nurses wouldnt increase her pain meds in her syringe driver, she died in a way that still haunts me nearly 2 years on, there was only me and my elderly father trying to care for her.

    Please dont blame yourself for your dad being in hospital, unless there is a lot of help already set up in the community, caring for a loved one on your own at home, is a very hard and heart breaking task and trust me, you still end up blaming yourself for stuff that you could not change.

    Spend as much time with your dad as you can, chat to him even when it looks like he is asleep, tell him that you love him and are with him and that he is safe.

    I send you best wishes and prayers to give you strength to deal with this.

    Annie

  • Thankyou Annie for your kind words and sharing your experience x