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contacting and asking for information from consultants,why am i being ignored ?

gazza11
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I was diagnosed with terminal cancer on the 6th of march this year,with the only option available to me being immunotherapy to prolong my life ,i was initially given a few months ,i would have thought that being in my situation i would have no trouble in getting advice /information ,how wrong ive been, from week one my emails were getting ignored as well as my requests to consultants secretary, presciptions requests were either delayed or not forfilled by gp surgery, i found it nigh on impossible to contact mcmillan support and when i did it was an answer phone and treatment delayed for weeks,claims for benefit taking up to 5 weeks to be proccessed ,its made me feel so down that i have practically given up any hope for at least a little bit of time to enjoy with my family without the worry of trying to maintain my health the best i can ,and be finacially worry free,i cant actually recall a single day where an open door has not been slammed in my face ,the latest fiasco being my consultant again dragging his heels over providing information to my life insurance so i can claim my policy early for being terminally ill ,it makes me so angry to see everywhere the wonderful help supposed to be available,when i have practically had none   

  • Hi gazza11,

    I'm so sorry to hear you've been experiencing all these issues getting support and information. I can certainly imagine that put together this must all be very frustrating.

    I hope that you're able to get some of the key answers and information from the hospital teams sorted soon. It sounds like you've already sought additional support externally from Macmillan - normally they are helpful and informative so it might be worth persisting with them if you can or if you feel you need to.

    If you haven't already, you may wish to have a look at Maggie's, who also have a number of resources available in addition to local centres.

    Keep going with your requests for information and support, and where necessary explaining how long you've been waiting, and perhaps try to keep this separate so that you can also focus on the things you want to, such as spending time with your family.

    You can of course use this forum as a safe space to write things down, vent, reach out to others, etc., and I hope it is helpful for that.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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